Imms Christine, Reilly Sheena, Carlin John, Dodd Karen
School of Occupational Therapy, La Trobe University, Melbourne, Victoria, Australia.
Dev Med Child Neurol. 2008 May;50(5):363-9. doi: 10.1111/j.1469-8749.2008.02051.x. Epub 2008 Mar 18.
The aim of this study was to investigate the participation of children with cerebral palsy (CP) in activities outside school and to compare their participation with a large representative sample of children. A population-based survey was conducted of children with CP born in Victoria, Australia in 1994 and 1995. Of 219 living children identified, 114 (52.1%) returned completed surveys. The children (65 males, 49 females) were aged between 10 years 9 months and 12 years 9 months (mean age 11y 9mo, SD 6mo). Thirty-eight per cent had hemiplegia, 23% diplegia, 4% triplegia, 34% quadriplegia, and 1% was of unknown topography. Distribution according to the Gross Motor Function Classification System (GMFCS) was 22.8% Level I, 36% Level II, 10.5% Level III, 8.8% Level IV, and 21.9% Level V. Distribution according to the Manual Ability Classification System (MACS) was: 19.3% Level I, 38.6% Level II, 14.0% Level III, 8.8% Level IV, and 19.3% Level V. Participation was measured using the Children's Assessment of Participation and Enjoyment. Participation in selected sport, cultural, and quiet leisure activities was compared with population-based data for 11-year-olds from the Australian Bureau of Statistics. Children with CP undertook a median of 26.5 activities (interquartile range 10) in 4 months which were commonly informal rather than formal. Intensity of participation was low. Diversity and intensity of participation was similar for children in each level of the MACS and the GMFCS, except for participants in Level V. More children with CP participated in organized sports (p<0.001) compared with other Australian children, although with lower frequency (p<0.001). Participation diversity and level of intensity of Australian children with CP were similar to those reported in a Canadian study.
本研究旨在调查脑瘫（CP）儿童参与校外活动的情况，并将他们的参与情况与一个具有广泛代表性的儿童样本进行比较。对1994年和1995年在澳大利亚维多利亚州出生的CP儿童进行了一项基于人群的调查。在确定的219名在世儿童中，114名（52.1%）返回了完整的调查问卷。这些儿童（65名男性，49名女性）年龄在10岁9个月至12岁9个月之间（平均年龄11岁9个月，标准差6个月）。38%为偏瘫，23%为双瘫，4%为三肢瘫，34%为四肢瘫，1%的瘫痪部位不明。根据粗大运动功能分类系统（GMFCS）的分布情况为：I级22.8%，II级36%，III级10.5%，IV级8.8%，V级21.9%。根据手动能力分类系统（MACS）的分布情况为：I级19.3%，II级38.6%，III级14.0%，IV级8.8%，V级19.3%。使用儿童参与和享受评估量表来衡量参与情况。将参与选定的体育、文化和安静休闲活动的情况与澳大利亚统计局提供的11岁儿童的基于人群的数据进行比较。CP儿童在4个月内参与活动的中位数为26.5项（四分位间距10），这些活动通常是非正式的而非正式组织的。参与强度较低。除了V级参与者外，MACS和GMFCS各水平儿童的参与多样性和强度相似。与其他澳大利亚儿童相比，更多的CP儿童参与了有组织的体育活动（p<0.001），尽管频率较低（p<0.001）。澳大利亚CP儿童的参与多样性和强度水平与加拿大一项研究报告的情况相似。
