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1
Public expectations for return of results from large-cohort genetic research.
Am J Bioeth. 2008 Nov;8(11):36-43. doi: 10.1080/15265160802513093.
3
Public expectations for return of results--time to stop being paternalistic?
Am J Bioeth. 2008 Nov;8(11):46-8. doi: 10.1080/15265160802513127.
5
Public perspectives on informed consent for biobanking.
Am J Public Health. 2009 Dec;99(12):2128-34. doi: 10.2105/AJPH.2008.157099. Epub 2009 Oct 15.
8
Public and biobank participant attitudes toward genetic research participation and data sharing.
Public Health Genomics. 2010;13(6):368-77. doi: 10.1159/000276767. Epub 2010 Jan 15.
9
The return of individual research findings in paediatric genetic research.
J Med Ethics. 2011 Mar;37(3):179-83. doi: 10.1136/jme.2010.037473. Epub 2010 Nov 8.
10
Public preferences for the return of research results in genetic research: a conjoint analysis.
Genet Med. 2014 Dec;16(12):932-9. doi: 10.1038/gim.2014.50. Epub 2014 May 22.

引用本文的文献

1
Engaging publics in biobanking and genetic research governance - a literature review towards informing practice in India.
Wellcome Open Res. 2021 Feb 16;6:5. doi: 10.12688/wellcomeopenres.16558.2. eCollection 2021.
3
Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers.
AJOB Empir Bioeth. 2024 Apr-Jun;15(2):108-119. doi: 10.1080/23294515.2023.2279965. Epub 2023 Nov 14.
4
Returning personal genetic information on susceptibility to arsenic toxicity to research participants in Bangladesh.
Environ Res. 2024 Jan 1;240(Pt 2):117482. doi: 10.1016/j.envres.2023.117482. Epub 2023 Oct 24.
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Studying the impact of translational genomic research: Lessons from eMERGE.
Am J Hum Genet. 2023 Jul 6;110(7):1021-1033. doi: 10.1016/j.ajhg.2023.05.011. Epub 2023 Jun 20.
6
Return of Individual Research Results: Participant Perspectives in a Longitudinal Community-Based Sample.
J Empir Res Hum Res Ethics. 2023 Jul;18(3):109-117. doi: 10.1177/15562646231173745. Epub 2023 May 16.
8
Attitudes and beliefs regarding race-targeted genetic testing of Black people: A systematic review.
J Genet Couns. 2023 Apr;32(2):435-461. doi: 10.1002/jgc4.1653. Epub 2023 Jan 16.
9
Return of individual genomic research results within the PRAEGNANT multicenter registry study.
Breast Cancer Res Treat. 2023 Jan;197(2):355-368. doi: 10.1007/s10549-022-06795-x. Epub 2022 Nov 21.

本文引用的文献

2
Ethical, legal, and social implications of biobanks for genetics research.
Adv Genet. 2008;60:505-44. doi: 10.1016/S0065-2660(07)00418-X.
4
Letting the genome out of the bottle--will we get our wish?
N Engl J Med. 2008 Jan 10;358(2):105-7. doi: 10.1056/NEJMp0708162.
6
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Annu Rev Genomics Hum Genet. 2007;8:343-64. doi: 10.1146/annurev.genom.7.080505.115721.
7
Medicine. Reestablishing the researcher-patient compact.
Science. 2007 May 11;316(5826):836-7. doi: 10.1126/science.1135489.
8
Obligations in offering to disclose genetic research results.
Am J Bioeth. 2006 Nov-Dec;6(6):44-6; author reply W10-2. doi: 10.1080/15265160600938575.
9
Considering the nature of individual research results.
Am J Bioeth. 2006 Nov-Dec;6(6):38-40; author reply W10-2. doi: 10.1080/15265160600938328.
10
Questions, complexities, and limitations in disclosing individual genetic results.
Am J Bioeth. 2006 Nov-Dec;6(6):34-6; author reply W10-2. doi: 10.1080/15265160600936058.

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