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疲劳、身体残疾和自我效能感是多发性硬化症患者对疾病的接受程度和健康相关生活质量的预测因素。

Fatigue, Physical Disability and Self-Efficacy as Predictors of the Acceptance of Illness and Health-Related Quality of Life in Patients with Multiple Sclerosis.

机构信息

Department of Health Psychology and Quality of Life, Institute of Psychology, Opole University, 45-040 Opole, Poland.

Faculty of Physical Education and Physiotherapy, Opole University of Technology, 45-758 Opole, Poland.

出版信息

Int J Environ Res Public Health. 2021 Dec 15;18(24):13237. doi: 10.3390/ijerph182413237.

Abstract

Multiple sclerosis (MS) is a chronic progressive demyelinating disease of the central nervous system that leads to permanent disability and many neurological symptoms, making everyday functioning difficult. The predictors of the acceptance of illness and the health-related quality of life in people with MS include the degree of disability, neurological symptoms and psychosocial factors, such as personal resources. The aim of our study is to determine the relationships among disability, fatigue, self-efficacy, acceptance of illness and quality of life. The study group consisted of 137 people diagnosed with multiple sclerosis-73 women and 64 men. EDSS, GNDS, LSES, AIS and MSIS-29 were used in the present study. The results show that all tested variables were significantly correlated with each other. Disability and fatigue were significant predictors of both the physical and psychological aspects of patients' quality of life. Self-efficacy was a significant predictor of both the acceptance of illness and the psychological aspect of patients' quality of life. Based on the current research study, it can be concluded that factors of a biomedical nature explain other aspects of struggling with the disease, rather than psychological resources.

摘要

多发性硬化症(MS)是一种中枢神经系统的慢性进行性脱髓鞘疾病,会导致永久性残疾和许多神经系统症状,使日常功能变得困难。多发性硬化症患者对疾病的接受程度和与健康相关的生活质量的预测因素包括残疾程度、神经症状和心理社会因素,如个人资源。我们的研究目的是确定残疾、疲劳、自我效能、对疾病的接受程度和生活质量之间的关系。研究组由 137 名被诊断为多发性硬化症的患者组成,其中 73 名女性和 64 名男性。本研究使用了 EDSS、GNDS、LSES、AIS 和 MSIS-29。结果表明,所有测试变量之间均存在显著相关性。残疾和疲劳是患者生活质量的生理和心理方面的重要预测因素。自我效能是对疾病的接受程度和患者生活质量的心理方面的重要预测因素。根据当前的研究,可以得出结论,生物医学因素解释了与疾病抗争的其他方面,而不是心理资源。

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