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Factors affecting MS patients' health-related quality of life and measurement challenges in Lebanon and the MENA region.影响黎巴嫩及中东和北非地区多发性硬化症患者健康相关生活质量的因素及测量挑战。
Mult Scler J Exp Transl Clin. 2020 Jan 9;6(1):2055217319848467. doi: 10.1177/2055217319848467. eCollection 2020 Jan-Mar.
2
The Relationships between Physical Activity, Self-Efficacy, and Quality of Life in People with Multiple Sclerosis.多发性硬化症患者的身体活动、自我效能感与生活质量之间的关系
Behav Sci (Basel). 2019 Nov 21;9(12):121. doi: 10.3390/bs9120121.
3
Self-efficacy and walking performance across the lifespan among adults with multiple sclerosis.多发性硬化症成年患者一生中的自我效能感与步行能力
Neurodegener Dis Manag. 2019 Oct;9(5):267-275. doi: 10.2217/nmt-2019-0007.
4
Biomedical Variables and Adaptation to Disease and Health-Related Quality of Life in Polish Patients with MS.波兰多发性硬化症患者的生物医学变量与疾病和健康相关生活质量的适应性。
Int J Environ Res Public Health. 2018 Nov 28;15(12):2678. doi: 10.3390/ijerph15122678.
5
Young adults' adjustment to a recent diagnosis of multiple sclerosis: The role of identity satisfaction and self-efficacy.年轻人对多发性硬化症近期诊断的调整:身份满意度和自我效能的作用。
Disabil Health J. 2019 Jan;12(1):72-78. doi: 10.1016/j.dhjo.2018.07.008. Epub 2018 Aug 1.
6
Quality of life and psychological well-being in the early stages of multiple sclerosis (MS): Importance of adopting a biopsychosocial model.多发性硬化症(MS)早期的生活质量和心理幸福感:采用生物心理社会模式的重要性。
Disabil Health J. 2018 Oct;11(4):555-561. doi: 10.1016/j.dhjo.2018.05.003. Epub 2018 May 31.
7
Multiple sclerosis.多发性硬化症
Handb Clin Neurol. 2018;148:723-730. doi: 10.1016/B978-0-444-64076-5.00046-6.
8
Multiple Sclerosis: Mechanisms and Immunotherapy.多发性硬化症:机制与免疫疗法。
Neuron. 2018 Feb 21;97(4):742-768. doi: 10.1016/j.neuron.2018.01.021.
9
Management of multiple sclerosis: the role of coping self-efficacy and self-esteem.多发性硬化症的管理:应对自我效能感和自尊的作用。
Psychol Health Med. 2018 Sep;23(8):964-969. doi: 10.1080/13548506.2018.1437277. Epub 2018 Feb 7.
10
Clinical Course of Multiple Sclerosis.多发性硬化症的临床病程。
Cold Spring Harb Perspect Med. 2018 Sep 4;8(9):a028928. doi: 10.1101/cshperspect.a028928.

疲劳、身体残疾和自我效能感是多发性硬化症患者对疾病的接受程度和健康相关生活质量的预测因素。

Fatigue, Physical Disability and Self-Efficacy as Predictors of the Acceptance of Illness and Health-Related Quality of Life in Patients with Multiple Sclerosis.

机构信息

Department of Health Psychology and Quality of Life, Institute of Psychology, Opole University, 45-040 Opole, Poland.

Faculty of Physical Education and Physiotherapy, Opole University of Technology, 45-758 Opole, Poland.

出版信息

Int J Environ Res Public Health. 2021 Dec 15;18(24):13237. doi: 10.3390/ijerph182413237.

DOI:10.3390/ijerph182413237
PMID:34948845
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8703876/
Abstract

Multiple sclerosis (MS) is a chronic progressive demyelinating disease of the central nervous system that leads to permanent disability and many neurological symptoms, making everyday functioning difficult. The predictors of the acceptance of illness and the health-related quality of life in people with MS include the degree of disability, neurological symptoms and psychosocial factors, such as personal resources. The aim of our study is to determine the relationships among disability, fatigue, self-efficacy, acceptance of illness and quality of life. The study group consisted of 137 people diagnosed with multiple sclerosis-73 women and 64 men. EDSS, GNDS, LSES, AIS and MSIS-29 were used in the present study. The results show that all tested variables were significantly correlated with each other. Disability and fatigue were significant predictors of both the physical and psychological aspects of patients' quality of life. Self-efficacy was a significant predictor of both the acceptance of illness and the psychological aspect of patients' quality of life. Based on the current research study, it can be concluded that factors of a biomedical nature explain other aspects of struggling with the disease, rather than psychological resources.

摘要

多发性硬化症(MS)是一种中枢神经系统的慢性进行性脱髓鞘疾病,会导致永久性残疾和许多神经系统症状,使日常功能变得困难。多发性硬化症患者对疾病的接受程度和与健康相关的生活质量的预测因素包括残疾程度、神经症状和心理社会因素,如个人资源。我们的研究目的是确定残疾、疲劳、自我效能、对疾病的接受程度和生活质量之间的关系。研究组由 137 名被诊断为多发性硬化症的患者组成,其中 73 名女性和 64 名男性。本研究使用了 EDSS、GNDS、LSES、AIS 和 MSIS-29。结果表明,所有测试变量之间均存在显著相关性。残疾和疲劳是患者生活质量的生理和心理方面的重要预测因素。自我效能是对疾病的接受程度和患者生活质量的心理方面的重要预测因素。根据当前的研究,可以得出结论,生物医学因素解释了与疾病抗争的其他方面,而不是心理资源。