Buresova Gabriela, Veleminsky Milos, Veleminsky Milos
Faculty of Health and Social Studies, South Bohemian University, Ceske Budejovice, Czech Republic.
Neuro Endocrinol Lett. 2008 Dec;29(6):1045-53.
Type 1 diabetes mellitus is a chronic health condition which affects approximately 750 thousand diabetics in the Czech Republic out of whom 3300 are children at the age of 8-18 years. The effects of illness and treatment go beyond medical control therefore evaluation of quality of life (QOL) is vital for children and adolescents with diabetes in order to examine how diabetes and its complicated and demanding treatment regimen affects their various life domains - family relationships, school, social activities, etc. Health related quality of life has been recognized as an important pediatric outcome measure in the past years and therefore health related quality of life of these children and adolescents was evaluated. The Pediatric Quality of Life Inventory 4.0 (PedsQL) and PedsQL 3.0 Module Diabetes were translated into the Czech language and administered to 79 children with diabetes and 79 parents. The objective of this study was to examine general and health related quality of life of children with diabetes at the age of 8-18. Results showed, that children endorse greater QOL in both general and diabetes related scales compared to their parents. Also, the concordance in reports of parents and children of QOL in children was variable. With regard to the aim of the research to determine whether QOL outcomes are predicted by duration of diabetes, results show that the duration of diabetes is a significant predictor of QOL in children. These results of QOL in children in the Czech Republic are then compared with the outcomes available from abroad.
1型糖尿病是一种慢性健康疾病，在捷克共和国，约有75万糖尿病患者，其中3300名是8至18岁的儿童。疾病和治疗的影响超出了医疗控制范围，因此，评估生活质量（QOL）对于糖尿病儿童和青少年至关重要，以便研究糖尿病及其复杂且要求严格的治疗方案如何影响他们生活的各个领域——家庭关系、学校、社交活动等。在过去几年中，与健康相关的生活质量已被视为一项重要的儿科结局指标，因此对这些儿童和青少年的与健康相关的生活质量进行了评估。《儿童生活质量量表4.0》（PedsQL）和《儿童生活质量量表3.0糖尿病模块》被翻译成捷克语，并应用于79名糖尿病儿童和79名家长。本研究的目的是调查8至18岁糖尿病儿童的总体生活质量和与健康相关的生活质量。结果显示，与他们的父母相比，儿童在总体和糖尿病相关量表上都认可更高的生活质量。此外，父母和儿童对儿童生活质量报告的一致性存在差异。关于研究目的，即确定糖尿病病程是否能预测生活质量结果，结果表明，糖尿病病程是儿童生活质量的一个重要预测因素。然后将捷克共和国儿童的这些生活质量结果与国外可得的结果进行比较。
