Schattner Emanuel, Shahar Golan, Abu-Shakra Mahmoud
Department of Psychology, Ben-Gurion University of the Negev, Beer-Sheva, Israel.
Am J Orthopsychiatry. 2008 Oct;78(4):466-72. doi: 10.1037/a0014392.
This study examines the place occupied by chronic illness in the inner lives of 15 women suffering from Systemic Lupus Erythematosus (SLE). A phenomenological analysis of illness narratives demonstrates that sufferers construe their illness as a protagonist or, using an object-relations informed perspective, as an internal object. That is, with time sufferers constituted a mental representation of SLE that in itself has the power to influence the sufferers' affective states and behaviors. An insight into these "illness relations" is conducive to a better understanding of the "lived experience" of SLE for disabled, economically disadvantaged women. Through their experience, the study of risk and resilience in chronic illness may be advanced.
本研究考察了慢性病在15名系统性红斑狼疮（SLE）女性患者内心生活中所占的位置。对疾病叙述的现象学分析表明，患者将自己的疾病理解为主角，或者从客体关系视角来看，将其视为一个内在客体。也就是说，随着时间推移，患者构建了SLE的心理表征，这种表征本身就有能力影响患者的情感状态和行为。深入了解这些“疾病关系”有助于更好地理解残疾、经济上处于不利地位的女性对SLE的“生活体验”。通过她们的经历，或许可以推动对慢性病风险和恢复力的研究。
