Clemmer Sarah J, Ward-Griffin Catherine, Forbes Dorothy
New Dundee, Ontario.
Can J Aging. 2008 Fall;27(3):267-83. doi: 10.3138/cja.27.3.267.
Canadians are experiencing increased life expectancy and chronic illness requiring end-of-life care. There is limited research on the multiple roles for family members providing home-based palliative care. Based on a larger ethnographic study of client-family-provider relationships in home-based palliative care, this qualitative secondary analysis explores the enactment of multiple roles for family members providing home-based palliative care to seniors with advanced cancer. Family members had multiple expectations to provide care but felt their expectations of services were unmet. The process of enacting multiple roles was depicted by three interrelated themes: balancing, re-prioritizing, and evolving. Positive and negative health responses resulted from attempts to minimize personal health while simultaneously maintaining health. "True" family-centred care was found to be lacking, but should be a goal of health professionals involved in end-of-life care.
加拿大人的预期寿命在增加，慢性病患者需要临终关怀。关于家庭成员在提供居家姑息治疗中所扮演多种角色的研究有限。基于一项关于居家姑息治疗中客户-家庭-提供者关系的大型人种学研究，这项定性二次分析探讨了为晚期癌症老年人提供居家姑息治疗的家庭成员所扮演多种角色的具体表现。家庭成员有多种护理期望，但觉得他们对服务的期望未得到满足。扮演多种角色的过程由三个相互关联的主题描述：平衡、重新排序和演变。在试图尽量减少个人健康问题同时又维持健康的过程中，产生了积极和消极的健康反应。发现缺乏 “真正” 的以家庭为中心的护理，但这应该是参与临终关怀的健康专业人员的目标。
