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信息时代的关怀:利用个人在线网络提升对照顾者的支持

Caring in the Information Age: Personal Online Networks to Improve Caregiver Support.

作者信息

Piraino Emily, Byrne Kerry, Heckman George A, Stolee Paul

机构信息

School of Public Health and Health Systems, University of Waterloo, Waterloo, ON.

Schlegel - University of Waterloo Research Institute for Aging, University of Waterloo, Waterloo, ON, Canada.

出版信息

Can Geriatr J. 2017 Jun 30;20(2):85-93. doi: 10.5770/cgj.20.271. eCollection 2017 Jun.

Abstract

BACKGROUND

It is becoming increasingly important to find ways for caregivers and service providers to collaborate. This study explored the potential for improving care and social support through shared online network use by family caregivers and service providers in home care.

METHODS

This qualitative study was guided by Rogers' [NY: Free Press; 1995], and involved focus group and individual interviews of service providers (n = 31) and family caregivers (n = 4). Interview transcriptions were analyzed using descriptive, topic, and analytic coding, followed by thematic analysis.

RESULTS

The network was identified as presenting an opportunity to fill communication gaps presented by other modes of communication and further enhance engagement with families. Barriers included time limitations and policy-related restrictions, privacy, security, and information ownership.

CONCLUSION

Online networks may help address longstanding home-care issues around communication and information-sharing. The success of online networks in home care requires support from care partners. Future research should pilot the use of online networks in home care using barrier and facilitator considerations from this study.

摘要

背景

寻找护理人员与服务提供者合作的方式变得越来越重要。本研究探讨了家庭护理人员和服务提供者通过共享在线网络来改善护理和社会支持的可能性。

方法

本定性研究以罗杰斯的理论为指导(纽约:自由出版社;1995年),对服务提供者(n = 31)和家庭护理人员(n = 4)进行了焦点小组和个人访谈。使用描述性、主题性和分析性编码对访谈记录进行分析,随后进行主题分析。

结果

该网络被视为一个填补其他沟通方式所造成的沟通空白并进一步加强与家庭互动的机会。障碍包括时间限制、与政策相关的限制、隐私、安全和信息所有权。

结论

在线网络可能有助于解决长期存在的家庭护理沟通和信息共享问题。在线网络在家庭护理中的成功需要护理伙伴的支持。未来的研究应利用本研究中关于障碍和促进因素的考量,对在线网络在家庭护理中的应用进行试点。

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Family Caregivers and Consumer Health Information Technology.家庭护理人员与消费者健康信息技术
J Gen Intern Med. 2016 Jan;31(1):117-21. doi: 10.1007/s11606-015-3494-0. Epub 2015 Aug 27.

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