Shu Bih-Ching
Institute of Allied Health Sciences and Department of Nursing, National Cheng Kung University,Taiwan.
Autism. 2009 Jan;13(1):81-91. doi: 10.1177/1362361307098517.
The purpose of this study was to explore the relationship between the quality of life (QOL) and feeling of mothers of a child with autism. The QOL instrument was also used. A total of 104 participants completed all questionnaires, which included the Taiwan version of the WHOQOL-BREF. A final robust parsimonious structural model showed a positive correlation between the four domains of QOL. Mother's feeling was positively related to the physical and psychological domains. History of chronic disease was negatively related to mother's feeling and the physical domain. Religion was negatively correlated with the psychological and environmental domains. The study provided evidence that the WHOQOL-BREF is an adequate and appropriate instrument in the assessment of caregivers of children with autism in Taiwan. Mother's feeling, history of chronic disease and religion were related to QOL in these mothers of children with autism.
本研究的目的是探讨自闭症儿童母亲的生活质量（QOL）与感受之间的关系。同时也使用了生活质量评估工具。共有104名参与者完成了所有问卷，其中包括世界卫生组织生活质量简表（WHOQOL-BREF）的台湾版本。最终稳健简约的结构模型显示生活质量的四个领域之间存在正相关。母亲的感受与身体和心理领域呈正相关。慢性病病史与母亲的感受和身体领域呈负相关。宗教信仰与心理和环境领域呈负相关。该研究提供了证据，证明WHOQOL-BREF是评估台湾自闭症儿童照顾者的一种充分且合适的工具。在这些自闭症儿童的母亲中，母亲的感受、慢性病病史和宗教信仰与生活质量有关。
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