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忽视脑瘫儿童及其家庭的心理关怀及其对他们在沙特阿拉伯职业参与的影响。

Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia.

机构信息

Department of Rehabilitation Sciences, College of Health and Rehabilitation Sciences, Princess Nourah bint Abdulrahman University, P.O. Box 84428, Riyadh 11671, Saudi Arabia.

出版信息

Medicina (Kaunas). 2024 Jul 27;60(8):1216. doi: 10.3390/medicina60081216.


DOI:10.3390/medicina60081216
PMID:39202497
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11356549/
Abstract

: Many children with (CP) and their families in Saudi Arabia struggle emotionally. Unfortunately, there have not been many studies conducted on how to help them with these challenges. This research aims to bring attention to this gap and to explore how a lack of proper mental health care might affect these children's ability to participate in everyday activities. : In this cross-sectional descriptive study, a survey was conducted between August and October 2023. A total of 300 parents of CP children from Saudi Arabia participated in the study. The impact of psychological care negligence on the occupational engagement of CP children and their families was assessed by designing a valid questionnaire. : A total of 300 parents of children with CP participated in this study. The majority of the sample, 71% of parents, said that their children did not receive any psychological care, and 59.7% of the participants said that their children did not even receive a referral to a psychologist. However, 60.3% of parents of children noticed a significant decline in the occupational performance of their children, and 65.7% predicted an improvement in their children's performance with future psychological care. : It is clear that there is a lack of awareness about the importance of mental health care for children with CP in Saudi Arabia. This lack of care hinders these children and their families' occupational engagement and social participation.

摘要

许多患有脑瘫(CP)的沙特儿童及其家庭在情感上都面临着困难。不幸的是,目前针对如何帮助他们应对这些挑战的研究并不多。本研究旨在关注这一空白,并探讨缺乏适当的心理健康护理可能会如何影响这些儿童参与日常活动的能力。

在这项横断面描述性研究中,于 2023 年 8 月至 10 月期间进行了一项调查。共有 300 名来自沙特阿拉伯的 CP 儿童的家长参与了这项研究。通过设计一份有效的问卷,评估了心理护理疏忽对 CP 儿童及其家庭职业参与的影响。

共有 300 名 CP 儿童的家长参与了这项研究。大多数样本(71%的家长)表示,他们的孩子没有接受任何心理护理,59.7%的参与者表示他们的孩子甚至没有被转介给心理学家。然而,60.3%的儿童家长注意到孩子的职业表现明显下降,65.7%的家长预测未来的心理护理会改善孩子的表现。

很明显,沙特阿拉伯的家长对脑瘫儿童心理健康护理的重要性缺乏认识。这种护理的缺乏阻碍了这些儿童及其家庭的职业参与和社会参与。

相似文献

[1]
Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia.

Medicina (Kaunas). 2024-7-27

[2]
Exploring participation in family activities among Serbian children with cerebral palsy and children with typical development: diversity, frequency, children's presence, and engagement.

Disabil Rehabil. 2022-5

[3]
The health and well-being of caregivers of children with cerebral palsy.

Pediatrics. 2005-6

[4]
Malnutrition is common in children with cerebral palsy in Saudi Arabia - a cross-sectional clinical observational study.

BMC Neurol. 2019-12-10

[5]
Incorporating children's and their parents' perspectives into condition-specific quality-of-life instruments for children with cerebral palsy: a qualitative study.

Value Health. 2011-4-30

[6]
Oral health of individuals with cerebral palsy in Saudi Arabia: A systematic review.

Community Dent Oral Epidemiol. 2024-4

[7]
Activities and participation of children with cerebral palsy: parent perspectives.

Disabil Rehabil. 2015

[8]
Characteristics of Children with Cerebral Palsy and Their Utilization of Services in Saudi Arabia.

Healthcare (Basel). 2023-10-7

[9]
The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers?

Pediatrics. 2004-8

[10]
Parenting behaviors, marital discord and the mental health of young females: a cross-sectional study from Saudi Arabia.

Ann Saudi Med. 2020

本文引用的文献

[1]
Online Support Groups for Family Caregivers: Scoping Review.

J Med Internet Res. 2023-12-13

[2]
Caregiver's Quality of Life Among Children with Cerebral Palsy in the Kingdom of Saudi Arabia, and Various Influencing Factors: A Single Cohort Study.

J Multidiscip Healthc. 2023-11-29

[3]
Parental stress in families of children with special educational needs: a systematic review.

Front Psychiatry. 2023-8-10

[4]
Cognition and learning difficulties in a representative sample of school-aged children with cerebral palsy.

Res Dev Disabil. 2023-7

[5]
The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016.

Public Health Rep. 2023

[6]
Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review.

BMJ Open. 2023-4-3

[7]
The experience of stigma in family caregivers of people with schizophrenia spectrum disorders: A meta-synthesis study.

Heliyon. 2023-3-5

[8]
Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children.

Int J Environ Res Public Health. 2023-2-21

[9]
Level of Awareness and Attitude Toward Cerebral Palsy Among Parents in Al-Baha City, Saudi Arabia.

Cureus. 2022-11-22

[10]
The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia.

Disabil Rehabil. 2023-12

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