Raju Suma, Hepsibah P E V, Niharika M K
Department of Speech-Language Pathology, JSS Institute of Speech and Hearing, Mysuru, India.
Int J Dev Disabil. 2023 Feb 6;69(3):371-378. doi: 10.1080/20473869.2023.2173832. eCollection 2023.
Research has raised concerns about the quality of life (QOL) of parents of children with Autism spectrum disorder (ASD). Parents in different cultures show different psychological functioning when caring for a child with ASD. Hence, we examined QOL in parents of children with ASD in India and its relationship with socio-demographic factors. We used a self-reported questionnaire and WHOQOL-BREF instrument to collect data on socio-demographic details and QOL respectively. Data were collected from two groups of participants - parents of children with ASD and parents of typically developing children ( = 60). Results revealed significant differences in QOL between the two groups. Further, we found a positive correlation between socio-demographic variables and QOL in parents of children with ASD. Findings emphasize the need for intervention approaches aimed at family functioning, improving support services, and assisting parents to develop healthy coping strategies.
研究引发了对自闭症谱系障碍（ASD）患儿父母生活质量（QOL）的关注。不同文化背景的父母在照顾患有ASD的孩子时表现出不同的心理功能。因此，我们研究了印度ASD患儿父母的生活质量及其与社会人口学因素的关系。我们使用一份自我报告问卷和世界卫生组织生活质量简表（WHOQOL-BREF）工具分别收集社会人口学细节和生活质量的数据。数据收集自两组参与者——ASD患儿的父母和发育正常儿童的父母（每组60人）。结果显示两组在生活质量上存在显著差异。此外，我们发现社会人口学变量与ASD患儿父母的生活质量之间存在正相关。研究结果强调了采取干预措施的必要性，这些措施旨在改善家庭功能、加强支持服务并帮助父母制定健康的应对策略。
