Glaw Xanthe Meryn, Garrick Therese M, Terwee Peter J, Patching Jo R, Blake Helen, Harper Clive
Discipline of Pathology, The University of Sydney, Sydney, NSW, Australia.
Cell Tissue Bank. 2009 Aug;10(3):241-6. doi: 10.1007/s10561-009-9121-8. Epub 2009 Jan 28.
Understanding what influences people to donate, or not donate, body organs and tissues is very important for the future of transplant surgery and medical research (Garrick in J Clin Neurosci 13:524-528, 2006). A previous web-based motivation survey coordinated by the New South Wales Tissue Resource Centre found that most people who participated in brain donation were young, female, educated Australians, not affiliated with any particular religion, and with a higher prevalence of medical illness than the general Australian population. It discussed the main motivating factors for brain donation to be "the benefits of the research to medicine and science". This study has been replicated in a paper-based version to capture a broader cross-section of the general population, to find out who they are and what motivates them to donate. All consented and registered brain donors (n = 1,323) were sent a questionnaire via the post and recipients were given 3 months to complete the questionnaire and return it in a reply paid envelope. Results were entered into the original web-based survey and analyzed using SPSS version 10. Six hundred and fifty-eight questionnaires were returned completed, a response rate of 53%. The results show that people from all age groups are interested in brain donation. The over 65's are the largest of the groups (30.7%). The majority of the participants were female (60.6%), married (49.2%) with children (65.8%), employed (52.9%) and have a tertiary education (73.3%). They were either non-religious (48.2%) or Christian (41.6%) and were mostly Australian (65.4%). Most (81%) had pledged to donate other organs and tissues for transplantation. The most commonly cited reasons for the donation were to benefit science (27.6%), to benefit medicine (23.9%), a family illness (17.5%) and to benefit the community (16.6%). This study demonstrates that people across all age groups are interested in brain donation. Recruitment of new brain donors could target the over 65 female Australians, who are not religious or Christian and who have also donated other organs and tissues for transplant purposes. It also indicates the need to make donation for research part of the national transplant donation program.
了解影响人们捐赠或不捐赠人体器官和组织的因素，对于移植手术和医学研究的未来发展非常重要（加里克，《临床神经科学杂志》，2006年第13卷，第524 - 528页）。新南威尔士州组织资源中心此前开展的一项基于网络的动机调查发现，参与脑捐赠的大多数人是年轻、受过教育的澳大利亚女性，不属于任何特定宗教，且与一般澳大利亚人群相比，患有疾病的比例更高。该调查讨论了脑捐赠的主要动机因素是“研究对医学和科学的益处”。本研究以纸质版形式重复进行，以涵盖更广泛的普通人群，了解他们是谁以及促使他们捐赠的动机。所有同意并登记的脑捐赠者（n = 1323）通过邮寄方式收到一份问卷，收件人有3个月时间填写问卷并使用回邮付费信封寄回。结果录入原始的基于网络的调查中，并使用SPSS 10版本进行分析。共收到658份完整回复问卷，回复率为53%。结果显示，各年龄组的人都对脑捐赠感兴趣。65岁以上的人群占比最大（30.7%）。大多数参与者为女性（60.6%），已婚（49.2%）且育有子女（65.8%），有工作（52.9%），拥有高等教育学历（73.3%）。他们要么无宗教信仰（48.2%），要么是基督教徒（41.6%），且大多是澳大利亚人（65.4%）。大多数人（81%）已承诺捐赠其他器官和组织用于移植。最常提及的捐赠原因是为了造福科学（27.6%）、造福医学（23.9%）、家庭疾病（17.5%）以及造福社区（16.6%）。本研究表明，各年龄组的人都对脑捐赠感兴趣。招募新的脑捐赠者可以针对65岁以上、无宗教信仰或非基督教的澳大利亚女性，她们也已捐赠其他器官和组织用于移植。这也表明需要将用于研究的捐赠纳入国家移植捐赠计划。
