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创伤性脑损伤后少数群体长期社区融入的客观与主观评估

Objective and subjective assessment of long-term community integration in minority groups following traumatic brain injury.

作者信息

Mascialino Guido, Hirshson Chari, Egan Mathew, Cantor Joshua, Ashman Teresa, Tsaousides Theodore, Spielman Lisa

机构信息

Mount Sinai School of Medicine, Department of Rehabilitation Medicine, New York, NY, USA.

出版信息

NeuroRehabilitation. 2009;24(1):29-36. doi: 10.3233/NRE-2009-0451.

DOI:10.3233/NRE-2009-0451
PMID:19208955
Abstract

Previous studies that used objective measures of community integration found that in the first year after injury, minority groups with traumatic brain injury (TBI) exhibit lower levels of community integration than White participants. The objective of this study was to determine if this discrepancy persists beyond one year post injury, and if assessing subjective components of community integration helps understand these differences. Participants were 360 community dwelling adults with TBI including 29% from minority backgrounds. Mean time post injury was 8.66 years (SD = 9.94). Main outcome measure utilized was the Participation Objective Participation Subjective (POPS). Multiple regression indicated that minority status predicted levels of transportation use (p < 0.01), with white participants reporting less use, after controlling for demographic and injury variables. When looking at subjective indicators, minority status predicted levels of dissatisfaction with community, civic, life and leisure participation (p < 0.01), and total levels of participation (p < 0.0125), with White participants reporting significantly less dissatisfaction. Findings indicate that differences between minorities and white participants in objective aspects of community integration after one year post-injury are only evident in levels of transportation use. However, when looking at subjective indicators differences between groups are present in other areas. These findings underscore the importance of considering the consumer's subjective experience when providing services to minorities in a rehabilitation setting.

摘要

以往使用社区融入客观衡量指标的研究发现,在受伤后的第一年,患有创伤性脑损伤(TBI)的少数群体的社区融入水平低于白人参与者。本研究的目的是确定这种差异在受伤一年后是否仍然存在,以及评估社区融入的主观因素是否有助于理解这些差异。研究参与者为360名患有TBI的社区居住成年人,其中29%来自少数族裔背景。受伤后的平均时间为8.66年(标准差=9.94)。主要使用的结果衡量指标是参与客观-参与主观(POPS)。多元回归表明,在控制了人口统计学和损伤变量后,少数族裔身份可预测交通使用水平(p<0.01),白人参与者报告的交通使用较少。在查看主观指标时,少数族裔身份可预测对社区、公民、生活和休闲参与的不满程度(p<0.01)以及参与的总体水平(p<0.0125),白人参与者报告的不满程度明显较低。研究结果表明,受伤一年后,少数族裔与白人参与者在社区融入客观方面的差异仅在交通使用水平上明显。然而,在查看主观指标时,群体之间的差异在其他领域也存在。这些发现强调了在康复环境中为少数族裔提供服务时考虑消费者主观体验的重要性。

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引用本文的文献

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The Value of Patient Registries to Advance Basic and Translational Research in the Area of Traumatic Brain Injury.患者登记系统对推进创伤性脑损伤领域基础研究和转化研究的价值。
Front Behav Neurosci. 2022 Apr 25;16:846919. doi: 10.3389/fnbeh.2022.846919. eCollection 2022.
2
Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research: A Traumatic Brain Injury Model Systems National Database Study.种族/族裔与创伤性脑损伤结局研究中的留存率:一项创伤性脑损伤模型系统国家数据库研究
J Head Trauma Rehabil. 2018 Jul/Aug;33(4):219-227. doi: 10.1097/HTR.0000000000000395.
3
Affective state and community integration after traumatic brain injury.
创伤性脑损伤后的情感状态与社区融入
Am J Phys Med Rehabil. 2014 Dec;93(12):1086-94. doi: 10.1097/PHM.0000000000000163.