McLean Alison M, Jarus Tal, Hubley Anita M, Jongbloed Lyn
GF Strong Rehabilitation Centre , Vancouver, BC , Canada .
Disabil Rehabil. 2014;36(17):1409-18. doi: 10.3109/09638288.2013.834986. Epub 2013 Sep 23.
To examine the association between social participation and subjective quality of life (SQOL) for non-employed, community-dwelling adults with moderate to severe traumatic brain injury (TBI) at 1 year or greater post-injury.
A correlational study was conducted involving 46 participants. Social participation was measured using the Community Integration Questionnaire, Social Provisions Scale and the Adult Subjective Assessment of Participation. SQOL was measured using the Quality of Life and Health Questionnaire, Abdel-Khalek Happiness Scale and UCLA Loneliness Scale.
Higher levels of happiness and global quality of life were each associated with higher levels of enjoyment, satisfaction with performance and higher proportion of activities performed with others. Lower levels of loneliness were associated with higher levels of general social integration and higher levels of perceived social supports. There were no associations found between SQOL and the objective social participation measures of diversity, frequency (intensity) or proportion of activities performed outside of home.
Findings contribute to the TBI literature in showing that it is: (a) the more subjective and not objectively measured nature of participation that is associated with SQOL and (b) positive and negative aspects of quality of life show different relationships with social participation variables. Implications for Rehabilitation A high proportion of individuals with traumatic brain injury (TBI) experiences reduced involvement in social participation (involvement in social and leisure activities and within a social network) and low subjective quality of life (SQOL). This study suggests that, by simply increasing the variety and frequency of social and leisure activities, there may be no positive influences on SQOL. Instead, this study suggests that, to increase SQOL, it is important to increase opportunities for individuals to participate with others and also to enhance their subjective experience of social and leisure activities. The large variance obtained of scores for social participation and SQOL provide a reminder to clinicians to maintain an individualized approach when working with individuals with TBI.
探讨受伤1年或更长时间后，中度至重度创伤性脑损伤（TBI）的非就业社区成年居民的社会参与度与主观生活质量（SQOL）之间的关联。
进行了一项相关性研究，涉及46名参与者。使用社区融入问卷、社会支持量表和成人参与主观评估来测量社会参与度。使用生活质量与健康问卷、阿卜杜勒 - 哈莱克幸福感量表和加州大学洛杉矶分校孤独感量表来测量主观生活质量。
较高的幸福感和总体生活质量分别与较高的享受程度、对表现的满意度以及与他人一起进行活动的较高比例相关。较低的孤独感与较高的总体社会融入水平和较高的感知社会支持水平相关。在主观生活质量与社会参与的多样性、频率（强度）或在家外进行活动的比例等客观测量指标之间未发现关联。
研究结果为创伤性脑损伤文献做出了贡献，表明：（a）与主观生活质量相关的是参与度中更主观而非客观测量的性质；（b）生活质量的积极和消极方面与社会参与变量呈现不同的关系。康复意义 很大一部分创伤性脑损伤（TBI）患者社会参与度降低（参与社交和休闲活动以及社交网络中的活动）且主观生活质量（SQOL）较低。本研究表明，仅仅增加社交和休闲活动的种类和频率，可能对主观生活质量没有积极影响。相反，本研究表明，为了提高主观生活质量，增加个体与他人一起参与的机会以及增强他们对社交和休闲活动的主观体验很重要。社会参与度和主观生活质量得分的较大差异提醒临床医生在治疗创伤性脑损伤患者时要保持个性化方法。
