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在治愈与康复之间:儿童癌症幸存者的悖论

Between being cured and being healed: the paradox of childhood cancer survivorship.

作者信息

Cantrell Mary Ann, Conte Teresa M

机构信息

College of Nursing, Villanova University, Villanova, Pennsylvania, USA.

出版信息

Qual Health Res. 2009 Mar;19(3):312-22. doi: 10.1177/1049732308330467.

Abstract

In this article, we describe how young adults who are transitioning off treatment for childhood cancer and beginning early survivorship are living in what might be described as a paradox of reality. These survivors' dual reality is their experience of intense frustration with their current state of functioning, and an overwhelming relief that therapy is over and that they survived. They have feelings of fear, trepidation, and anxiety for what experiences lay ahead, but have hope for the future. Finally, they acknowledge the growth they achieved through the experience of cancer treatment, as well as the many missed opportunities to experience normalcy while undergoing therapy. Young adults who are in early cancer survivorship exist in a reality in which they are living disease free, but perceive themselves as having a long road to travel to be healed.

摘要

在本文中,我们描述了那些结束儿童癌症治疗并开始早期生存阶段的年轻人是如何生活在一种或许可以被描述为现实悖论之中的。这些幸存者的双重现实是,他们对自己目前的功能状态深感沮丧,同时又因治疗结束且自己活了下来而感到无比宽慰。他们对未来的经历感到恐惧、惶恐和焦虑,但对未来仍抱有希望。最后,他们承认自己在癌症治疗经历中实现了成长,也意识到在接受治疗期间错过了许多体验正常生活的机会。处于癌症早期生存阶段的年轻人生活在一种现实中,即他们没有疾病,但却觉得自己要走很长的路才能康复。

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