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接受白血病治疗的儿科患者重返校园:关于日常生活和疾病经历的叙事的混合方法分析。

Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience.

作者信息

Tremolada Marta, Taverna Livia, Bonichini Sabrina, Pillon Marta, Biffi Alessandra, Putti Maria Caterina

机构信息

Department of Developmental and Social Psychology, University of Padua, Via Venezia, 8 35131-Padova, Italy.

Pediatric Hematology, Oncology and Stem Cell Transplant Center, Department of Woman's and Child's Health, University of Padua, 35128 Padua, Italy.

出版信息

Behav Sci (Basel). 2020 Jul 1;10(7):107. doi: 10.3390/bs10070107.

Abstract

In the last few years, more children and adolescents healed from leukemia go back to their daily life, even if they can show some psycho-social difficulties. The study adopted semi-structured interviews and a mixed-method approach to examine the narratives of 75 children and adolescents about their return to school post 2-years treatment for leukemia. The aims are to collect their illness experiences, to understand how they feel about school and daily routines and to identify the best socio-demographic and illness predictors of a good re-adaptation to school and daily life. The results show that by increasing age and when the pediatric patient have received a hematopoietic stem cell transplantation, at the stop-therapy time, her/his perception about relationships at school and academic performance decrease, especially if his/her feelings about the disease and follow-up visits are negative.

摘要

在过去几年里,越来越多从白血病中康复的儿童和青少年回归日常生活,即便他们可能表现出一些心理社会方面的困难。该研究采用半结构化访谈和混合方法,来考察75名儿童和青少年在接受两年白血病治疗后重返校园的经历。目的是收集他们的患病经历,了解他们对学校和日常生活的感受,并确定对重新适应学校和日常生活有良好预测作用的最佳社会人口统计学和疾病因素。结果显示,随着年龄增长,以及儿科患者在停止治疗时接受了造血干细胞移植,其对学校人际关系和学业成绩的认知会下降,尤其是当他/她对疾病和后续随访的感受为负面时。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c34d/7407376/0b815cefb29a/behavsci-10-00107-g001.jpg

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