Steele Rose, Bosma Harvey, Johnston Meaghen Fletcher, Cadell Susan, Davies Betty, Siden Hal, Straatman Lynn
School of Nursing, Faculty of Health, York University, Toronto, Ontario.
J Palliat Care. 2008 Winter;24(4):229-39.
Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care.
The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinent lines of research.
A Delphi technique was used with an interdisciplinary panel (n = 14-16) of researchers and frontline clinicians in pediatric palliative care in Canada.
Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life?
These identified priorities will provide guidance and direction for research efforts in Canada, and may prove useful in providing optimal care to patients and families in pediatric palliative care.
儿科姑息治疗日益被认为是一种需要特定技能和知识的专业护理类型，然而，正如在几个国家所发现的那样，几乎没有可供护理依据的研究证据。
该项目的目标是在姑息治疗从业者和研究人员之间就确定相关研究方向达成共识。
对加拿大儿科姑息治疗领域的研究人员和一线临床医生组成的跨学科小组（n = 14 - 16）采用了德尔菲技术。
确定了四个优先研究问题：接受儿科姑息服务的患者和家长最重要的是什么？儿科姑息治疗中家庭的丧亲需求是什么？疼痛和症状管理的最佳实践标准是什么？缓解临终痛苦的有效策略是什么？
这些确定的优先事项将为加拿大的研究工作提供指导和方向，并可能证明有助于为儿科姑息治疗中的患者和家庭提供最佳护理。
