Perceived change in life satisfaction following epilepsy diagnosis.

AIMS

To study the development in perceived life satisfaction of people with epilepsy.

METHODS

In 2005, members of the Norwegian Epilepsy Association responded to a version of the Self-Anchoring Striving Scale (termed Cantril's Ladder). In this article, we compare the answers given to two questions, one related to the person's life satisfaction today, and the other related to the person's life satisfaction 5 years ago. The same people were asked about time since epilepsy onset. Those who reported being diagnosed during the previous 5 years were compared with those who had been diagnosed earlier, with regard to reported life satisfaction, at the present and 5 years ago. The hypothesis to be tested was that people who have been diagnosed with epilepsy report their life satisfaction as being reduced in comparison to their life satisfaction before the diagnosis.

RESULTS

The hypothesis was confirmed. The respondents in our study who had been diagnosed less than 5 years ago perceived their life satisfaction to be reduced by almost a standard deviation as compared to their life satisfaction before the diagnosis.

CONCLUSIONS

People diagnosed with epilepsy perceive their life satisfaction to be reduced as a consequence of the diagnosis, and should be supported in their coping with the disease. This conclusion should be drawn with caution, owing to a low response rate and difficulties related to retrospective self-reports. Prospective population-based studies are needed to explore the causal pathways.