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与穆斯林父母沟通:“四项原则”并不像所宣称的那样在文化上中立。

Communicating with Muslim parents: "the four principles" are not as culturally neutral as suggested.

作者信息

Westra Anna E, Willems Dick L, Smit Bert J

机构信息

Department of Paediatrics, Leiden University Medical Centre, 2300 RC Leiden, The Netherlands.

出版信息

Eur J Pediatr. 2009 Nov;168(11):1383-7. doi: 10.1007/s00431-009-0970-8. Epub 2009 Mar 21.

Abstract

The "four principles approach" has been popularly accepted as a set of universal guidelines for biomedical ethics. Based on four allegedly trans-cultural principles (respect for autonomy, nonmaleficence, beneficence and justice), it is supposed to fulfil the need of a 'culturally neutral approach to thinking about ethical issues in health care'. On the basis of a case-history, this paper challenges the appropriateness of communicating in terms of these four principles with patients with a different background. The case describes the situation in which Muslim parents bring forward that their religion keeps them from consenting to end-of-life decisions by non-religious paediatricians. In a literature analysis, the different meanings and roles of the relevant principles in non-religious and Islamic ethics are compared. In non-religious ethics, the principle of nonmaleficence may be used to justify withholding or withdrawing futile or damaging treatments, whereas Islamic ethics applies this principle to forbid all actions that may harm life. And while the non-religious version of the principle of respect for autonomy emphasises the need for informed consent, the Islamic version focuses on "respect for the patient". We conclude that the parties involved in the described disagreement may feel committed to seemingly similar, but actually quite different principles. In such cases, communication in terms of these principles may create a conflict within an apparently common conceptual framework. The four principles approach may be very helpful in analysing ethical dilemmas, but when communicating with patients with different backgrounds, an alternative approach is needed that pays genuine attention to the different backgrounds.

摘要

“四原则方法”已被广泛接受为一套生物医学伦理学的通用准则。它基于四个所谓的跨文化原则(尊重自主性、不伤害、有利和公正),旨在满足“以文化中立的方式思考医疗保健中的伦理问题”的需求。基于一个病例史,本文对用这四个原则与背景不同的患者进行沟通的适当性提出了质疑。该病例描述了穆斯林父母提出他们的宗教信仰使他们不同意非宗教儿科医生做出的临终决定的情况。在文献分析中,比较了这些相关原则在非宗教伦理和伊斯兰伦理中的不同含义和作用。在非宗教伦理中,不伤害原则可用于为拒绝或停止无效或有害的治疗提供正当理由,而伊斯兰伦理则应用这一原则禁止所有可能伤害生命的行为。而且,虽然非宗教版本的尊重自主性原则强调知情同意的必要性,但伊斯兰版本则侧重于“尊重患者”。我们得出结论,所描述的分歧中涉及的各方可能会觉得他们遵循的是看似相似但实际上截然不同的原则。在这种情况下,用这些原则进行沟通可能会在一个看似共同的概念框架内引发冲突。四原则方法在分析伦理困境时可能非常有帮助,但在与背景不同的患者沟通时,需要一种真正关注不同背景的替代方法。

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