Raggi Alberto, Leonardi Matilde
Neurology, Public Health and Disability Unit, Scientific Directorate, Neurological Institute C. Besta IRCCS Foundation, Milan, Italy.
Int J Rehabil Res. 2009 Jun;32(2):148-53. doi: 10.1097/MRR.0b013e32831e4573.
The objective of this study was to explore to what extent the ACTIVLIM questionnaire, designed to evaluate limitations in activities involving upper and lower limbs in adults and children with neuromuscular diseases, is linked to the domains of the Activities and Participation of the International Classification of Functioning, Disability and Health (ICF), and to its Children and Youth version (ICF-CY). Standardized ICF linking rules were applied. Items were linked to the most specific ICF-CY codes (e.g. d4501 - Walking long distances), and rolling-up procedures were applied to report information to more generic and informative upper-level codes (e.g. d450 - Walking). ACTIVLIM items were linked to 13 second-level ICF codes of Mobility, Self-care, and Domestic life chapters. The majority of ACTIVLIM items are liked to d510 - Washing oneself, d445 - Hand and arm use, and d410 - Changing basic body position. None of the ACTIVLIM items links to the codes added by the new ICF-CY classification. Disability is a multidimensional phenomenon, and measurements of disability should reflect this multidimensionality. The good psychometric properties of ACTIVLIM are demonstrated, and the aim of this mapping exercise is to provide information on its content. A relevant part of ACTIVLIM items is linked to a few ICF codes, referred to as basic body movements and washing, and other activities are less represented. We think that the ACTIVLIM covers a circumscribed set of activities and, therefore, we suggest using it together with other functional evaluation tools, to complement the range of information on activity limitations that are not covered by its items.
本研究的目的是探讨旨在评估患有神经肌肉疾病的成人和儿童上下肢活动受限情况的ACTIVLIM问卷，在多大程度上与《国际功能、残疾和健康分类》（ICF）及其儿童和青少年版本（ICF-CY）的活动与参与领域相关联。应用了标准化的ICF关联规则。将项目与最具体的ICF-CY代码（如d4501 - 长距离行走）相关联，并采用汇总程序将信息报告给更通用且信息丰富的上级代码（如d450 - 行走）。ACTIVLIM项目与活动能力、自我照料和日常生活章节的13个二级ICF代码相关联。ACTIVLIM的大多数项目与d510 - 自我洗漱、d445 - 手和手臂的使用以及d410 - 改变基本身体姿势相关。ACTIVLIM的项目均未与新的ICF-CY分类所增加的代码相关联。残疾是一个多维度的现象，残疾测量应反映这种多维度性。ACTIVLIM良好的心理测量特性得到了证明，本次映射练习的目的是提供有关其内容的信息。ACTIVLIM项目的一个相关部分与一些ICF代码相关联，这些代码被称为基本身体动作和洗漱，而其他活动的代表性较低。我们认为ACTIVLIM涵盖了一组有限的活动，因此，我们建议将其与其他功能评估工具一起使用，以补充其项目未涵盖的活动受限信息范围。
