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伽玛刀治疗患者的体验:一项定性研究的经验教训

Gamma Knife patients' experience: lessons learned from a qualitative study.

作者信息

Clifford Wendy, Sharpe Heather, Khu Kathleen Joy, Cusimano Michael, Knifed Eva, Bernstein Mark

机构信息

Division of Neurosurgery, Toronto Western Hospital, University Health Network, University of Toronto, 399 Bathurst Street, 4 West Wing, Toronto, ON M5T 2S8, Canada.

出版信息

J Neurooncol. 2009 May;92(3):387-92. doi: 10.1007/s11060-009-9830-7. Epub 2009 Apr 9.

DOI:10.1007/s11060-009-9830-7
PMID:19357964
Abstract

BACKGROUND

Gamma Knife stereotactic radiosurgery (GKSRS) is an outpatient radiation therapy procedure in which a highly focused dose of radiation is delivered in a single fraction. It is used to treat a variety of well-demarcated intracranial lesions, including brain tumors. This study aims to explore patients' perspectives of the GKSRS process and the various stages involved.

METHODS

Qualitative research methodology was used. Three semi-structured, open-ended interviews were conducted with 29 participants, who were ambulatory adult patients who underwent GKSRS between August 2007 and August 2008.

RESULTS

Seven overarching themes emerged from the data: (1) patients were satisfied with the overall treatment experience; (2) the majority of patients had a good knowledge of GKSRS; (3) the quality and amount of patient education were adequate; (4) process expectations were largely met; (5) most patients prioritized outcome over process; (6) most patients had a realistic expectation of outcomes; and (7) pain and anxiety were important issues.

CONCLUSIONS

The study results reflected positively on the GKSRS process, but there were some areas identified that require improvement, specifically the referral-consultation process and the management of procedural pain. These insights on the patients' perspectives can lead to better delivery of care and ultimately, improved health outcomes.

摘要

背景

伽玛刀立体定向放射外科治疗(GKSRS)是一种门诊放射治疗程序,通过单次分割给予高度聚焦的辐射剂量。它用于治疗各种界限清晰的颅内病变,包括脑肿瘤。本研究旨在探讨患者对GKSRS过程及所涉及各个阶段的看法。

方法

采用定性研究方法。对29名参与者进行了三次半结构化、开放式访谈,这些参与者为2007年8月至2008年8月期间接受GKSRS的非卧床成年患者。

结果

数据中出现了七个总体主题:(1)患者对总体治疗体验感到满意;(2)大多数患者对GKSRS有较好的了解;(3)患者教育的质量和数量足够;(4)过程期望基本得到满足;(5)大多数患者将结果置于过程之上;(6)大多数患者对结果有现实的期望;(7)疼痛和焦虑是重要问题。

结论

研究结果对GKSRS过程给予了积极反映,但也发现了一些需要改进的领域,特别是转诊咨询过程和手术疼痛的管理。这些关于患者看法的见解可带来更好的护理服务,并最终改善健康结果。

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