Monash Department of Clinical Epidemiology at Cabrini Hospital, Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
Patient Educ Couns. 2009 Nov;77(2):248-54. doi: 10.1016/j.pec.2009.03.011. Epub 2009 Apr 16.
To obtain patient feedback about the structure and quality of medication information leaflets and validate the usefulness of the Evaluative Linguistic Framework (ELF) for improving written communication with patients.
Triangulated feedback about a set of rheumatoid arthritis (RA) medication leaflets, some developed with knowledge of the ELF, was obtained from 27 people with RA from interviews, focus group discussion and self-administered questionnaires. The principal elements of the framework were investigated: overall generic structure and functions of each stage, interpersonal relationship between writer and reader, technicality of language and density of information.
Participant assessments of the leaflets aligned with the framework in terms of what constituted a good leaflet. While the main purpose of the leaflets was identified as being information provision, participants also wanted clear instructions, benefits to be highlighted and side effects to be comprehensively listed. For comprehensiveness and user-friendliness, leaflets developed with guidance of the ELF were consistently preferred.
According to people with RA, leaflets generated from a linguistic framework are clearer and more effective in communicating information about medications.
The ELF is a user-friendly, structured analytic system that can assist with the development of effective high quality patient information materials.
获取患者对药物信息单结构和质量的反馈意见,并验证评估语言框架(ELF)在改进与患者书面交流方面的有效性。
从 27 名类风湿关节炎(RA)患者那里通过访谈、焦点小组讨论和自我管理问卷获得了一套 RA 药物用药单的反馈意见,其中一些用药单是基于 ELF 开发的。研究调查了框架的主要要素:每个阶段的整体通用结构和功能、作者和读者之间的人际关系、语言的技术性和信息密度。
参与者对用药单的评估与框架一致,认为好的用药单应该具备哪些要素。虽然用药单的主要目的是提供信息,但参与者还希望用药单能提供清晰的说明、突出益处并全面列出副作用。为了全面性和用户友好性,参与者一致更喜欢基于 ELF 指导开发的用药单。
根据 RA 患者的反馈,基于语言框架生成的用药单在传达药物信息方面更清晰、更有效。
ELF 是一个用户友好、结构分析系统,可以帮助开发有效的高质量患者信息材料。