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改善哮喘儿童的药物疗效:建立研究议程的多方利益相关者研讨会成果

Improving Drug Benefits for Children with Asthma: Results of a Multi-stakeholder Workshop to Build a Research Agenda.

作者信息

Ungar Wendy J, Paterson Michael, Cope Shannon, Kozyrskyj Anita

机构信息

Child Health Evaluative Sciences, The Hospital for Sick Children Research Institute; Department of Health Policy, Management and Evaluation, University of Toronto; Institute for Clinical Evaluative Sciences, Sunnybrook Health Sciences Centre, Toronto, ON.

出版信息

Healthc Policy. 2008 May;3(4):66-77.

PMID:19377329
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2645164/
Abstract

Asthma is the most common chronic childhood disease, and evidence suggests that children underutilize inhaled corticosteroid ("controller") medications. Drug plans that provide benefits to children vary widely across Canada, and families may face high out-of-pocket costs. As an initial step in a knowledge exchange process aimed at motivating relevant research, a workshop was convened in March 2007 with diverse stakeholders to explore potential research topics within the theme of improving drug benefits for Canadian children with asthma. Six key challenges for further investigation were identified: (1) changing the perception of asthma from an episodic to a chronic disease, (2) improving diagnosis and management, (3) increasing intersectoral communication, (4) improving the quality of data, (5) developing better drug benefit plans and (6) practising more effective advocacy.

摘要

哮喘是儿童最常见的慢性疾病,有证据表明儿童对吸入性皮质类固醇(“控制类”)药物的使用不足。为儿童提供福利的药物计划在加拿大各地差异很大,家庭可能面临高昂的自付费用。作为旨在推动相关研究的知识交流过程的第一步,2007年3月召开了一次研讨会,邀请了不同的利益相关者,探讨在改善加拿大哮喘儿童药物福利这一主题下的潜在研究课题。确定了六个有待进一步研究的关键挑战:(1)将哮喘的观念从一种发作性疾病转变为慢性疾病,(2)改善诊断和管理,(3)加强部门间沟通,(4)提高数据质量,(5)制定更好的药物福利计划,以及(6)开展更有效的宣传。

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本文引用的文献

1
Public drug plan coverage for children across Canada: a portrait of too many colours.加拿大全国儿童公共药物计划覆盖情况:一幅色彩斑斓却问题诸多的图景。
Healthc Policy. 2005 Sep;1(1):100-22.
2
Effect of cost-sharing on use of asthma medication in children.费用分担对儿童哮喘药物使用的影响。
Arch Pediatr Adolesc Med. 2008 Feb;162(2):104-10. doi: 10.1001/archpediatrics.2007.21.
3
Eliminating asthma disparities: a national workshop to set a working agenda.消除哮喘差异:制定工作议程的全国性研讨会
Chest. 2007 Nov;132(5 Suppl):753S-756S. doi: 10.1378/chest.07-1927.
4
Adverse events in community care: developing a research agenda.社区护理中的不良事件:制定研究议程。
Healthc Q. 2007;10(3):63-9. doi: 10.12927/hcq..18926.
5
Asthma guideline use by pediatricians in private practices and asthma morbidity.私人执业儿科医生对哮喘指南的应用与哮喘发病率
Pediatrics. 2006 Nov;118(5):1880-7. doi: 10.1542/peds.2006-1019.
6
Canadian Pediatric Asthma Consensus guidelines, 2003 (updated to December 2004): introduction.《2003年加拿大儿童哮喘共识指南》(更新至2004年12月):引言
CMAJ. 2005 Sep 13;173(6 Suppl):S12-4. doi: 10.1503/cmaj.045064.
7
Cancer disparities: developing a multidisciplinary research agenda - preface.
Cancer Causes Control. 2005 Feb;16(1):1-3. doi: 10.1007/s10552-004-1252-4.
8
Benefit plan design and prescription drug utilization among asthmatics: do patient copayments matter?哮喘患者的福利计划设计与处方药使用情况:患者自付费用重要吗?
Front Health Policy Res. 2004;7:95-127. doi: 10.2202/1558-9544.1053.
9
Worldwide severity and control of asthma in children and adults: the global asthma insights and reality surveys.全球儿童和成人哮喘的严重程度及控制情况:全球哮喘洞察与现实调查
J Allergy Clin Immunol. 2004 Jul;114(1):40-7. doi: 10.1016/j.jaci.2004.04.042.
10
Lay voices on allergic conditions in children: parents' narratives and the negotiation of a diagnosis.儿童过敏状况下的非专业声音:父母的叙述与诊断的协商
Soc Sci Med. 2004 Apr;58(7):1299-308. doi: 10.1016/S0277-9536(03)00328-9.