Sussman Tamara
School of Social Work, McGill University, Montreal, Quebec, Canada.
J Gerontol Soc Work. 2009 May-Jun;52(4):406-22. doi: 10.1080/01634370802609205.
The literature clearly denotes that spouses differ from other family members in their reactions to caregiving, their patterns of service use and their assessment of specific services. Yet, despite their prevalence as caregivers, little is known about their unique perceptions of community services and the factors that impact their experiences with the service system. The purpose of this study was to explore the relative influence of (a) spouses' personal factors (e.g., gender, family support) and (b) service factors (e.g., one-on-one professional support), on spousal caregivers' perceptions of community services. The study employed a survey design with a sample of 73 spousal caregivers caring for their partners with dementia at home. This study found that spousal caregivers have more negative perceptions of the service system when their in-home workers are not informed about their spouses' likes, dislikes and routines. This service factor was the most significant predictor of caregivers' service perceptions. The study further found that most spousal caregivers receive fewer than five consultations from a non-medical professional over a one year period. While spouses longed for more professional support, this service factor was not uniquely associated with service related stress. The policy and practice implications of these findings are discussed.
文献明确表明,配偶在对护理的反应、服务使用模式以及对特定服务的评估方面与其他家庭成员不同。然而,尽管他们作为护理者很普遍,但对于他们对社区服务的独特看法以及影响他们在服务系统中体验的因素却知之甚少。本研究的目的是探讨(a)配偶的个人因素(如性别、家庭支持)和(b)服务因素(如一对一的专业支持)对配偶护理者对社区服务看法的相对影响。该研究采用了调查设计,样本为73名在家照顾患有痴呆症伴侣的配偶护理者。本研究发现,当居家护理人员不了解其配偶的喜好、厌恶和日常习惯时,配偶护理者对服务系统的看法更负面。这一服务因素是护理者对服务看法的最显著预测因素。该研究还发现,大多数配偶护理者在一年时间里从非医疗专业人员那里获得的咨询少于五次。虽然配偶渴望更多的专业支持,但这一服务因素与服务相关压力并无独特关联。文中讨论了这些研究结果的政策和实践意义。