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家庭照顾者的喘息利用和对丧失的反应:关系很重要。

Respite utilization and responses to loss among family caregivers: relationship matters.

机构信息

Department of Psychiatry, University of Rochester School of Medicine and Dentistry, Rochester, New York 14642, USA.

Senior Veterans Clinic, St. Louis VA Medical Center, St. Louis, Missouri, USA.

出版信息

Death Stud. 2013 May-Jun;37(5):483-92. doi: 10.1080/07481187.2012.654593.

DOI:10.1080/07481187.2012.654593
PMID:24517567
Abstract

Family caregivers of physically and cognitively impaired older adults face multiple challenges when providing care, including responses to tangible and anticipated losses. However, little is known about the grief experiences of family caregivers and how these might differentially influence the care-related behaviors of spouses and adult children. The present study examined the longitudinal relationship between grief reactions in current spousal and adult-children caregivers (N = 72) and in-home respite utilization over 3 months. The Heartfelt Sadness and Longing subscale of the Marwit-Meuser Caregiver Grief Inventory Short Form (S. J. Marwit & T. M. Meuser, 2005) was used to assess the grief experiences of participants, and demonstrated good internal reliability among spousal and adult-child caregivers of older adults with a variety of cognitive and physical conditions. Although there was not an association between spouses' grief subscale scores and later respite use, adult children were more likely to use respite after reporting higher levels of grief reactions. This study contributes to our ongoing understanding of differences between spousal and adult-children caregivers of impaired older adults and also lends further support for the reliability and construct validity of the Heartfelt Sadness and Longing subscale of the Marwit-Meuser Caregiver Grief Inventory.

摘要

身体和认知功能受损的老年人的家庭照顾者在提供护理时面临着多重挑战,包括对有形和预期损失的反应。然而,人们对家庭照顾者的悲伤体验知之甚少,也不知道这些体验如何对配偶和成年子女的护理相关行为产生不同的影响。本研究考察了当前配偶和成年子女照顾者(N=72)的悲伤反应与 3 个月内家庭喘息利用之间的纵向关系。使用 Marwit-Meuser 照顾者悲伤量表短表(S. J. Marwit 和 T. M. Meuser,2005)的“衷心悲伤和渴望”子量表来评估参与者的悲伤体验,该量表在具有各种认知和身体状况的老年人的配偶和成年子女照顾者中表现出良好的内部一致性。尽管配偶的悲伤分量表得分与后来的喘息使用之间没有关联,但报告有更高悲伤反应的成年子女更有可能使用喘息。本研究有助于我们对身体和认知功能受损的老年人的配偶和成年子女照顾者之间差异的持续理解,也进一步支持 Marwit-Meuser 照顾者悲伤量表的“衷心悲伤和渴望”子量表的可靠性和结构有效性。

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2
Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review.痴呆症患者照料者使用喘息干预措施的障碍与促进因素:一项综合综述
Arch Public Health. 2018 Nov 22;76:72. doi: 10.1186/s13690-018-0316-y. eCollection 2018.
3
Respite care services for children with special healthcare needs: Parental perceptions.
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J Spec Pediatr Nurs. 2018 Jul;23(3):e12217. doi: 10.1111/jspn.12217. Epub 2018 Apr 26.