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医生医嘱补充预先指示:挽救患者自主权。

Physician orders to supplement advance directives: rescuing patient autonomy.

作者信息

Miller Ronald B

机构信息

Department of Medicine, School of Medicine, College of Health Sciences, University of California, Irvine, USA.

出版信息

J Clin Ethics. 2009 Fall;20(3):212-9.

Abstract

To adapt Churchill's comment on democracy, "No one pretends that [POLSTs are] perfect..." but physicians' orders about life-sustaining treatments are a very important supplement to advance directives, especially for patients who are extremely or terminally ill, and most particularly for patients who require emergency treatment by first responders or by physicians who do not know them as persons. The standardized orders of limited options, however, are no substitute for a detailed treatment directive of a patient with a known illness, with predictable trajectories and complications. And, in this latter circumstance, a thoroughly informed proxy may also assist physicians in selecting appropriate treatment for patients who have lost decisional capacity and/or the ability to express it. I believe all patients should have an advance directive, preferably a combined proxy-treatment directive, and preferably one that has been thoroughly discussed with the attending physician and with the proxy, successor proxies, and preferably relatives and friends. Nurses, social workers, and chaplains may be very helpful to the patient in thinking through his or her preferences, especially if the severity of illness and the limited efficacy of interventions are such that the patient would wish to omit life-sustaining treatment or to discontinue it after a time-limited trial. Finally, because POLST is new or yet to be initiated in many areas of the country, it behooves all physicians to become knowledgeable of POLST and to initiate discussion of it with colleagues, patients, patients' proxies, and with relatives of patients. Even more recent is the combined advance directive/physician's orders to permit natural dying, actionable immediately for patients suffering severely and irremediably, but actionable at a future time if the patient progresses to advanced stages of dementia or other devastating brain disorders. In order to encourage physicians to initiate advance care planning with their patients, this quote from a patient shortly before his death from prostatic cancer might prove helpful: "Not every patient can be saved, but his illness can be eased by the way that the doctor responds to him. In learning to talk to his patients, the doctor may talk himself back into loving his work. He has little to lose and everything to gain by letting the sick man into his heart. If he does, they can share--as few others can--the wonder, terror, and exultation of being on the edge of being"

摘要

套用丘吉尔对民主的评价来说,“没人会假装[医疗照护目标(POLST)]是完美的……” 但医生关于维持生命治疗的医嘱是对预立医疗指示的一项非常重要的补充,尤其对于身患重病或绝症的患者而言,对于那些需要急救人员或不了解其个人情况的医生进行紧急治疗的患者来说更是如此。然而,有限选项的标准化医嘱并不能替代针对患有已知疾病、具有可预测病程和并发症的患者制定的详细治疗指示。而且,在后一种情况下,充分知情的代理人也可以协助医生为丧失决策能力和/或表达能力的患者选择合适的治疗方法。我认为所有患者都应该有一份预立医疗指示,最好是一份综合的代理 - 治疗指示,最好是一份已经与主治医生、代理人、继任代理人,最好还有亲属和朋友进行过充分讨论的指示。护士、社会工作者和牧师在帮助患者思考其偏好方面可能非常有帮助,特别是当疾病的严重程度和干预措施的有限疗效使患者希望放弃维持生命的治疗或在有限时间的试验后停止治疗时。最后,由于医疗照护目标(POLST)在该国许多地区还是新事物或尚未启动,所有医生都应该了解医疗照护目标(POLST),并与同事、患者、患者的代理人以及患者的亲属展开相关讨论。更新的还有综合预立医疗指示/医生医嘱以允许自然死亡,对于遭受严重且无法治愈痛苦的患者可立即生效,但如果患者进展到痴呆晚期或其他严重脑部疾病阶段,则在未来某个时间生效。为了鼓励医生与患者开展预先护理计划,一位前列腺癌患者临终前的这段话可能会有所帮助:“并非每个患者都能被治愈,但医生对他的回应方式可以减轻他的病痛。在学会与患者交谈的过程中,医生可能会重新爱上自己的工作。让患者走进他的内心,医生几乎没有什么可失去的,却能收获一切。如果他这样做了,他们就能像很少有人能做到的那样,共同分享处于生死边缘的奇妙、恐惧和狂喜”

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