Lehmkuhl Heather D, Merlo Lisa J, Devine Katie, Gaines Jared, Storch Eric A, Silverstein Janet H, Geffken Gary R
Pediatric Psychology and Neuropsychology, Nationwide Children's Hospital, Columbus, OH 43205, USA.
J Clin Psychol Med Settings. 2009 Sep;16(3):209-15. doi: 10.1007/s10880-009-9164-9. Epub 2009 Apr 22.
Management of type 1 diabetes (T1D) involves balancing several components including diet, exercise, and medication. Peer involvement in management tasks is an important, but understudied, issue in T1D. This study presents results of a preliminary examination of perceptions of disease management in youth with T1D and their peers. Data were collected using a mixed methods (qualitative and quantitative data) approach during medical education time at a camp for youth with T1D and their peers. Results suggest that both youth with T1D and their peers believe that peers need more information about medical consequences of having diabetes. Further, youth with T1D and their peers would like coaching on how peers may help the child with T1D manage their illness better. Results provide preliminary ideas for intervention (i.e., including peers, assessing social support) in the medical setting as well as ideas for future research (i.e., examining relationships among perceptions and gender, time since diagnosis).
1型糖尿病(T1D)的管理涉及平衡多个要素,包括饮食、运动和药物治疗。同伴参与管理任务是1型糖尿病中一个重要但研究不足的问题。本研究展示了对1型糖尿病青少年及其同伴对疾病管理认知的初步调查结果。在一个面向1型糖尿病青少年及其同伴的营地的医学教育期间,采用混合方法(定性和定量数据)收集数据。结果表明,1型糖尿病青少年及其同伴都认为同伴需要更多关于患糖尿病的医学后果的信息。此外,1型糖尿病青少年及其同伴希望得到关于同伴如何更好地帮助患1型糖尿病的儿童管理疾病的指导。研究结果为医疗环境中的干预措施(即纳入同伴、评估社会支持)提供了初步思路,也为未来研究(即研究认知与性别、诊断后时间之间的关系)提供了思路。