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唐氏综合征产前筛查信息:知识的种族差异。

Information about prenatal screening for Down syndrome: ethnic differences in knowledge.

机构信息

Department of Public Health, Erasmus MC, University Medical Center Rotterdam, The Netherlands.

出版信息

Patient Educ Couns. 2009 Nov;77(2):279-88. doi: 10.1016/j.pec.2009.03.034. Epub 2009 May 5.

DOI:10.1016/j.pec.2009.03.034
PMID:19409748
Abstract

OBJECTIVE

To evaluate the provision of information about prenatal screening for Down syndrome to women of Dutch, Turkish and Surinamese origins, and to examine the effects of this provision on ethnic differences in knowledge about Down syndrome and prenatal screening.

METHODS

The study population consisted of 105 Dutch, 100 Turkish and 65 Surinamese pregnant women attending midwifery or obstetrical practices in The Netherlands. Each woman was personally interviewed for 3 weeks (mean) after booking for prenatal care.

RESULTS

Most women reported to have received oral and/or written information about prenatal screening by their midwife or obstetrician at booking for prenatal care. Turkish and Surinamese women less often read the information than Dutch women, more often reported difficulties in understanding the information, and had less knowledge about Down syndrome, prenatal screening and amniocentesis. Language skills and educational level contributed most to the explanation of these ethnic variations.

CONCLUSION

Although most Dutch, Turkish and Surinamese women reported to have received information from their midwife or obstetrician, ethnic differences in knowledge about Down syndrome and prenatal screening are substantial.

PRACTICE IMPLICATIONS

Interventions to improve the provision of information to women from ethnic minority groups should especially be aimed at overcoming language barriers, and targeting information to the women's abilities to comprehend the information about prenatal screening for Down syndrome.

摘要

目的

评估向荷兰、土耳其和苏里南裔女性提供唐氏综合征产前筛查信息的情况,并考察这种提供方式对唐氏综合征和产前筛查知识方面种族差异的影响。

方法

研究人群包括在荷兰接受助产士或妇产科护理的 105 名荷兰人、100 名土耳其人和 65 名苏里南人。每位女性在预约产前护理后,平均接受了 3 周的个人访谈。

结果

大多数女性表示在预约产前护理时从助产士或妇产科医生那里获得了口头和/或书面的产前筛查信息。与荷兰女性相比,土耳其和苏里南女性阅读信息的频率较低,报告理解信息存在困难的比例更高,并且对唐氏综合征、产前筛查和羊膜穿刺术的了解也较少。语言技能和教育水平对这些种族差异的解释贡献最大。

结论

尽管大多数荷兰、土耳其和苏里南女性表示从助产士或妇产科医生那里获得了信息,但在唐氏综合征和产前筛查知识方面仍存在显著的种族差异。

实践意义

为改善向少数族裔群体女性提供信息的干预措施,应特别注重克服语言障碍,并针对女性理解唐氏综合征产前筛查信息的能力提供信息。

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