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多发性硬化症患者的疲劳

Fatigue in multiple sclerosis patients.

作者信息

Mollaoğlu Mukadder, Ustün Emine

机构信息

Cumhuriyet University, School of Nursing, Department of Medical Nursing, Sivas, Turkey.

出版信息

J Clin Nurs. 2009 May;18(9):1231-8. doi: 10.1111/j.1365-2702.2008.02733.x.

Abstract

AIM

This study aimed to describe fatigue and the factors that affect fatigue in people with multiple sclerosis.

BACKGROUND

Fatigue is the most common symptom and has the greatest effect on multiple sclerosis patients' activities of daily living. There is limited understanding of the level of fatigue experienced by people with multiple sclerosis, with research currently limited to other symptoms and problems related to multiple sclerosis.

DESIGN

This research was conducted as a descriptive survey.

METHODS

The study involved 120 people with multiple sclerosis. The data were collected with a Patient Questionnaire and a Visual Analogue Scale for Fatigue (VAS-F). Variance analysis, Mann-Whitney U-test and Kruskal-Wallis test were used in the data analysis.

RESULTS

All of the individuals in the sample experienced fatigue. Their fatigue was also affected by factors such as age, gender, education, marital status, number of children, occupation and duration of illness. In addition, the situations with the greatest effect on their fatigue were taking a hot bath/shower, hot/humid weather, stress, infection and other illnesses causing fever, disturbance in sleep pattern, increase in daily activities and exercise.

CONCLUSIONS

Fatigue is a symptom that has a significant effect on the daily lives of people with multiple sclerosis. Accordingly, it is recommended that factors affecting fatigue in people with multiple sclerosis be evaluated and that education programmes directed at how to control these factors.

RELEVANCE TO CLINICAL PRACTICE

The determination of factors affecting fatigue is important for multiple sclerosis individuals' ability to cope with fatigue and keep it under control. To be able to accomplish this it is necessary for health care personnel, the family and friends to work together.

摘要

目的

本研究旨在描述多发性硬化症患者的疲劳状况以及影响疲劳的因素。

背景

疲劳是最常见的症状,对多发性硬化症患者的日常生活影响最大。人们对多发性硬化症患者所经历的疲劳程度了解有限,目前的研究仅限于与多发性硬化症相关的其他症状和问题。

设计

本研究采用描述性调查。

方法

该研究纳入了120名多发性硬化症患者。通过患者问卷和疲劳视觉模拟量表(VAS-F)收集数据。数据分析采用方差分析、曼-惠特尼U检验和克鲁斯卡尔-沃利斯检验。

结果

样本中的所有个体都经历过疲劳。他们的疲劳还受到年龄、性别、教育程度、婚姻状况、子女数量、职业和病程等因素的影响。此外,对他们疲劳影响最大的情况有洗热水澡/淋浴、炎热/潮湿天气、压力、感染以及其他引起发热的疾病、睡眠模式紊乱、日常活动增加和运动。

结论

疲劳是一种对多发性硬化症患者日常生活有重大影响的症状。因此,建议对影响多发性硬化症患者疲劳的因素进行评估,并开展针对如何控制这些因素的教育项目。

与临床实践的相关性

确定影响疲劳的因素对于多发性硬化症患者应对疲劳并将其控制在一定范围内的能力很重要。为了能够做到这一点,医护人员、家人和朋友需要共同努力。

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