Antle Beverley J, Montgomery Gert, Stapleford Christine
Faculty of Social Work, University of Toronto, Ontario, Canada.
Health Soc Work. 2009 May;34(2):97-106. doi: 10.1093/hsw/34.2.97.
Young people with physical disabilities experience greater difficulty than their able-bodied peers in many psychosocial domains as they transition toward adulthood. However, firsthand knowledge of the dimensions of social support that young people with physical disabilities find useful during this stage is lacking. This qualitative study involved 50 participants (21 youths with spina bifida and 29 parents) and focused on gaining an insider's perspective on the nature of social support. Building on the work of LaGreca, themes were mapped into four broad support domains: tangible, information, companionship/belonging/mutuality, and emotional. This research indicates that parents provide substantial all-purpose support in each of the four domains. A second major finding shows that support from peers and friends follows a unique and varied path with distinctive characteristics related to the realities of living with a disability. Implications for social work practice with targeted populations and systems are considered.
身体有残疾的年轻人在向成年过渡的过程中，在许多心理社会领域比身体健全的同龄人面临更大的困难。然而，目前缺乏对身体有残疾的年轻人在此阶段认为有用的社会支持维度的第一手了解。这项定性研究涉及50名参与者（21名患有脊柱裂的青少年和29名家长），重点是从内部人士的角度了解社会支持的本质。基于拉格雷卡的研究成果，主题被归纳为四个广泛的支持领域：实际支持、信息支持、陪伴/归属感/相互性支持和情感支持。这项研究表明，父母在这四个领域都提供了大量的通用支持。第二个主要发现表明，来自同龄人和朋友的支持遵循一条独特且多样的路径，具有与残疾生活现实相关的独特特征。文中还考虑了对针对特定人群和系统的社会工作实践的启示。
