Betz Cecily L, Smith Kathryn, Macias Kristy
USC Center of Excellence in Developmental Disabilities, Childrens Hospital Los Angeles, Department of Pediatrics, University of Southern California, Keck School of Medicine, Los Angeles, California, United States of America.
Int J Child Adolesc health. 2010;3(4):595-607.
The effectiveness of a cognitive-behavioral program, Transition Preparation Training (TPT), in combination with spina bifida (SB) management was compared to adolescents with SB who received only SB management. Design, setting and participants: Prospective controlled trial with an ethnically diverse sample (94%) of 65 adolescents with SB (31 in treatment group [mean age: 16.19]; 34 in control group [mean age: 15.71]) conducted at Childrens Hospital Los Angeles between September 2006 and September 2008. INTERVENTIONS: TPT was a three-module, eight sessions program offered in a 2 day workshop format to facilitate development of health care transition plan. MAIN OUTCOME MEASURES: Subjective well being as measured by the Personal Adjustment and Role Skills Scale (PARS III), Role mastery measured using Community Life Skills Scale (CLSS), and Self Care Practice with the Denyes Self-Care Practice Instrument (DSCPI-90©). RESULTS: No significant differences were found between groups of any treatment effect or treatment follow-up interaction. No substantial changes in the scores either between treatments of post treatments were found.
将认知行为项目“过渡准备训练”（TPT）与脊柱裂（SB）管理相结合的效果，与仅接受SB管理的脊柱裂青少年进行了比较。设计、设置和参与者：2006年9月至2008年9月在洛杉矶儿童医院对65名脊柱裂青少年进行的前瞻性对照试验，样本具有种族多样性（94%）（治疗组31人[平均年龄：16.19岁]；对照组34人[平均年龄：15.71岁]）。干预措施：TPT是一个由三个模块组成、共八节的项目，以两天工作坊的形式提供，以促进医疗保健过渡计划的制定。主要结局指标：通过个人适应和角色技能量表（PARS III）测量主观幸福感，使用社区生活技能量表（CLSS）测量角色掌握情况，以及使用登耶斯自我护理实践工具（DSCPI - 90©）测量自我护理实践情况。结果：在任何治疗效果或治疗随访交互作用的组间均未发现显著差异。在治疗前后的治疗之间，分数也未发现实质性变化。
