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法国一场公众宣传活动对偏头痛管理的影响。

Impact of a public sensitization campaign on migraine management in France.

作者信息

Donnet Anne, Lantéri-Minet Michel, Géraud Gilles, Guegan-Massardier Evelyne, Demarquay Geneviève, Giraud Pierric, Lucas Christian, Valade Dominique

机构信息

Department of Neurology, La Timone Hospital, 264 Boulevard Saint-Pierre, 13385 Marseille Cedex, France.

出版信息

J Headache Pain. 2009 Aug;10(4):241-7. doi: 10.1007/s10194-009-0128-0. Epub 2009 May 30.

Abstract

Migraine is a common and frequently disabling condition. Nevertheless, many migraine sufferers do not consult for migraine, are not medically followed up and self-treat the attacks. "Tour de France of migraine" consisted of free-access conferences held in six large towns in France following a wide public information campaign. This sensitization campaign aimed at providing participants with educational information on migraine disease and on current therapies. Headache sufferers were then invited to respond to two consecutive questionnaires delivered at the end of the conferences and 3 months later to assess the influence of the information delivered on their migraine management. Tour de France of migraine recruited mainly severe migraine sufferers, most of whom had already consulted and were medically followed up. However, migraine management was often suboptimal in these subjects since most of them found their acute treatment of attacks ineffective and only few of them received a prophylactic treatment. Three months after the conferences, more than half of respondents had consulted for headaches. There was a significant improvement in migraine-related disability, as reflected by a significant decrease in mean Headache Impact Test 6-item score, which might have been related to the higher proportion of subjects receiving a prophylactic treatment of migraine. The Tour de France of migraine campaign revealed the difficulty in sensitizing migraine sufferers towards the necessity of being medically followed up. Mainly patients with severe migraine attended the conferences and derived clinical benefit from the educational program. Other strategies should be developed to reach a wider population of migraine sufferers.

摘要

偏头痛是一种常见且常常使人致残的病症。然而,许多偏头痛患者并未就偏头痛问题咨询医生,没有接受医学随访,而是自行治疗发作症状。“偏头痛环法行”活动包括在法国六个大城市举办的免费参与的会议,此前开展了广泛的公众宣传活动。这场宣传活动旨在为参与者提供有关偏头痛疾病和当前治疗方法的教育信息。然后,邀请头痛患者对会议结束时以及3个月后连续发放的两份问卷做出回应,以评估所提供的信息对他们偏头痛管理的影响。“偏头痛环法行”活动主要招募了重度偏头痛患者,他们中的大多数人已经咨询过医生并接受医学随访。然而,这些患者的偏头痛管理往往并不理想,因为他们中的大多数人发现自己对发作症状的急性治疗无效,只有少数人接受了预防性治疗。会议三个月后,超过一半的受访者就头痛问题咨询过医生。偏头痛相关残疾状况有了显著改善,平均头痛影响测试6项得分显著下降就反映了这一点,这可能与接受偏头痛预防性治疗的受试者比例较高有关。“偏头痛环法行”活动揭示了让偏头痛患者认识到接受医学随访必要性的困难。主要是重度偏头痛患者参加了会议并从教育项目中获得了临床益处。应该制定其他策略以覆盖更广泛的偏头痛患者群体。

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