Einsiedel Edna, Premji Shainur, Geransar Rose, Orton Noelle C, Thavaratnam Thushaanthini, Bennett Laura K
Communication Studies, University of Calgary, Calgary, AB, Canada.
Stem Cell Rev Rep. 2009 Jun;5(2):102-7. doi: 10.1007/s12015-009-9063-3. Epub 2009 Apr 22.
Studies of public views on stem cell research have traditionally focused on human embryonic stem cells. With more recent scientific research on developing other stem cell sources, a series of focus group studies was undertaken with Canadian adults to examine their views on different stem cell sources (adult, umbilical cord blood, human embryonic stem cells, somatic cell nuclear transfer or SCNT, and interspecies nuclear transfer, or iSCNT). Views on three different policy models--a permissive, middle-of-the-road and restrictive policy approach--were also explored. Participants were recruited from several different social groups including patients, young adults, seniors, members of two ethnic communities, and a mixed group of adults. Participants were generally supportive of the use of adult stem cell sources. While there was also majority support for the use of hESC and SCNT, this was conditional on strict regulatory oversight. There was also majority support for a permissive policy which allows research on hESC and SCNT. General themes that cut across different groups included the potential cost of new technologies to the health care system, issues around who would gain access to these technologies, and trust in the scientific establishment and regulatory systems. A diversity of viewpoints was found as participants justified their positions on stem cell sources and policy approaches, showing more complexity and nuance than has been generally portrayed.
传统上,关于公众对干细胞研究看法的研究主要集中在人类胚胎干细胞上。随着最近关于开发其他干细胞来源的科学研究,对加拿大成年人进行了一系列焦点小组研究,以考察他们对不同干细胞来源(成人、脐带血、人类胚胎干细胞、体细胞核移植或SCNT,以及种间核移植或iSCNT)的看法。还探讨了对三种不同政策模式的看法——一种宽松、中间路线和严格的政策方法。参与者从几个不同的社会群体中招募,包括患者、年轻人、老年人、两个族裔社区的成员以及一组成年混合群体。参与者普遍支持使用成人干细胞来源。虽然也有多数人支持使用人类胚胎干细胞和体细胞核移植,但这是以严格的监管监督为条件的。对于允许对人类胚胎干细胞和体细胞核移植进行研究的宽松政策也有多数人支持。不同群体共有的一般主题包括新技术对医疗保健系统的潜在成本、谁将获得这些技术的问题,以及对科学机构和监管系统的信任。当参与者为他们在干细胞来源和政策方法上的立场辩护时,发现了各种各样的观点,显示出比通常所描绘的更多的复杂性和细微差别。