Speciality-Oncology, Hadassah Hebrew University Medical Centers, Jerusalem, Israel.
Psychooncology. 2010 Apr;19(4):423-30. doi: 10.1002/pon.1596.
Mothers, sisters, and daughters of women diagnosed with breast cancer have an increased need for factual information, counseling, and emotional support. The purpose of this exploratory, descriptive study was to identify the information and support needs of Israeli women with a family history of breast cancer; discover whether these needs have been met, by whom, and who is the preferred source for them.
128 healthy Israeli women, aged 18-65, with a first degree relative with breast cancer completed the adapted Information and Support Needs Questionnaire (ISNQ).
Information needs were ranked above support needs, especially information about disease prevention. The degree to which the needs were met was generally ranked as low, with response to the information needs ranking higher than the response to the support needs. The doctor was the prime source of choice for the information and support needs.
This study contributes to the understanding of the needs of patients' families, provides a framework for the improvement of methods of communication, and a basis for constructing information and support systems. In addition, it highlights the need for a multidisciplinary, proactive approach in health promotion for cancer patients' families.
被诊断患有乳腺癌的女性的母亲、姐妹和女儿对事实信息、咨询和情感支持的需求增加。本探索性描述性研究的目的是确定有乳腺癌家族史的以色列女性的信息和支持需求；发现这些需求是否得到满足，由谁满足，以及她们首选的来源是谁。
128 名年龄在 18-65 岁之间、有一级亲属患有乳腺癌的健康以色列女性完成了改编后的信息和支持需求问卷（ISNQ）。
信息需求的排名高于支持需求，特别是关于疾病预防的信息。需求满足程度普遍较低，对信息需求的反应高于对支持需求的反应。医生是信息和支持需求的首选来源。
本研究有助于了解患者家属的需求，为改进沟通方法提供框架，并为构建信息和支持系统提供基础。此外，它还强调了为癌症患者家属提供健康促进需要采取多学科、主动的方法。
