Breast. 2009 Oct;18(5):273-5. doi: 10.1016/j.breast.2009.05.005. Epub 2009 Jul 17.
It is estimated that approximately one-third of women diagnosed with early breast cancer will develop metastatic breast cancer (MBC) over the course of their disease. As advances have been made in the treatment of MBC, patients' life expectancy has increased and consequently more women are living with the disease. Many report feeling isolated in terms of the availability of resources, and the attention paid to MBC compared with early stage breast cancer. In order to identify the needs of patients with MBC, a group of 16 patient advocates from seven countries (the MBC Advocacy Working Group) met to share insights on the current obstacles facing women with MBC and discuss potential solutions for better addressing their unmet needs. The group compiled their findings into a Consensus Report, and the report and its recommendations are published here.
据估计,大约三分之一被诊断患有早期乳腺癌的女性在疾病过程中会发展为转移性乳腺癌(MBC)。随着 MBC 治疗的进展,患者的预期寿命有所延长,因此更多的女性正在与这种疾病共存。许多人报告说,在资源的可获得性以及与早期乳腺癌相比对 MBC 的关注度方面感到孤立。为了确定 MBC 患者的需求,来自七个国家的 16 名患者倡导者(MBC 倡导工作组)聚集在一起,分享了对 MBC 女性所面临的当前障碍的见解,并讨论了潜在的解决方案,以更好地满足她们未满足的需求。该小组将他们的发现汇编成一份共识报告,该报告及其建议现发表于此。