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本文引用的文献

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1st International consensus guidelines for advanced breast cancer (ABC 1).1 期国际乳腺癌治疗共识指南(ABC1)。
Breast. 2012 Jun;21(3):242-52. doi: 10.1016/j.breast.2012.03.003. Epub 2012 Mar 16.
2
A new look at informed consent for cancer clinical trials.癌症临床试验中知情同意的新视角。
J Oncol Pract. 2011 Jul;7(4):267-70. doi: 10.1200/JOP.2011.000347.
3
A population-based assessment of specialty physician involvement in cancer clinical trials.基于人群的癌症临床试验中专科医师参与情况评估。
J Natl Cancer Inst. 2011 Mar 2;103(5):384-97. doi: 10.1093/jnci/djq549. Epub 2011 Feb 11.
4
Accrual to clinical trials: let's look at the physicians.临床试验的入组情况:让我们看看医生们的情况。
J Natl Cancer Inst. 2011 Mar 2;103(5):357-8. doi: 10.1093/jnci/djr018. Epub 2011 Feb 11.
5
Lessons learned from the metastatic breast cancer community.转移性乳腺癌社区的经验教训。
Semin Oncol Nurs. 2010 Aug;26(3):195-202. doi: 10.1016/j.soncn.2010.05.004.
6
Survival differences among women with de novo stage IV and relapsed breast cancer.初诊 IV 期和复发乳腺癌女性的生存差异。
Ann Oncol. 2010 Nov;21(11):2169-2174. doi: 10.1093/annonc/mdq220. Epub 2010 Apr 28.
7
Ethics of mandatory research biopsy for correlative end points within clinical trials in oncology.肿瘤学临床试验中强制性研究活检的相关性终点的伦理学。
J Clin Oncol. 2010 May 20;28(15):2635-40. doi: 10.1200/JCO.2009.27.2443. Epub 2010 Apr 20.
8
Transitioning to breast cancer survivorship: perspectives of patients, cancer specialists, and primary care providers.过渡到乳腺癌生存:患者、癌症专家和初级保健提供者的观点。
J Gen Intern Med. 2009 Nov;24 Suppl 2(Suppl 2):S459-66. doi: 10.1007/s11606-009-1000-2.
9
Metastatic breast cancer patients: the forgotten heroes!转移性乳腺癌患者:被遗忘的英雄!
Breast. 2009 Oct;18(5):271-2. doi: 10.1016/j.breast.2009.09.001. Epub 2009 Sep 16.
10
Bridging gaps, expanding outreach: Metastatic Breast Cancer Advocacy Working Group Consensus Report. January 25, 2008.弥合差距,扩大服务范围:转移性乳腺癌倡导工作组共识报告。2008 年 1 月 25 日。
Breast. 2009 Oct;18(5):273-5. doi: 10.1016/j.breast.2009.05.005. Epub 2009 Jul 17.

转移性乳腺癌女性的认知和需求:以临床试验为重点。

Perceptions and needs of women with metastatic breast cancer: a focus on clinical trials.

机构信息

Texas Tech University Health Sciences Center, Paul L. Foster School of Medicine, 4800 Alberta Avenue, El Paso, TX 79905, United States.

出版信息

Breast. 2013 Jun;22(3):370-3. doi: 10.1016/j.breast.2013.02.017. Epub 2013 Mar 25.

DOI:10.1016/j.breast.2013.02.017
PMID:23535510
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3978177/
Abstract

Many patients are living longer with Metastatic Breast Cancer (MBC) than ever before. However, complete responses remain uncommon, and progression of disease is often inevitable. The experience of living with MBC exposes patients to a wide variety of clinical, psychological, social and spiritual issues. Although much research effort has focused on decision-making and coping strategies among women with early breast cancer, relatively little attention has been given to the needs, experiences, and perceptions of women living with MBC. Furthermore, there are major research gaps in understanding and prioritizing the types of psycho-social interventions that would make the most difference in the lives of these patients. Fortunately, the tide is turning. This communication represents a joint effort of the Breast International Group and the National Cancer Institute (NCI)-sponsored North American Breast Cancer Group (BIG-NABCG) to highlight perceptions and needs of patients living with MBC and current obstacles facing them, and recommends strategies for better addressing some of these unmet needs.

摘要

许多患有转移性乳腺癌(MBC)的患者的存活时间比以往任何时候都要长。然而,完全缓解仍然很少见,疾病的进展往往是不可避免的。患有 MBC 会使患者面临广泛的临床、心理、社会和精神问题。尽管许多研究都集中在早期乳腺癌女性的决策和应对策略上,但对于患有 MBC 的女性的需求、经验和看法关注相对较少。此外,在理解和优先考虑最能改善这些患者生活的心理社会干预措施方面,存在重大的研究差距。幸运的是,这种情况正在发生变化。本交流代表乳腺国际集团和美国国家癌症研究所(NCI)赞助的北美乳腺癌症组(BIG-NABCG)的共同努力,强调了患有 MBC 的患者的看法和需求以及他们目前面临的障碍,并建议了更好地满足其中一些未满足需求的策略。