Andrews Nicole R, Chaney John M, Mullins Larry L, Wagner Janelle L, Hommel Kevin A, Jarvis James N
Department of Psychology, 116 North Murray, Oklahoma State University, Stillwater, OK 74078, USA.
Rehabil Psychol. 2009 Feb;54(1):45-50. doi: 10.1037/a0014443.
Examine age-related patterns of association between parent-reported illness intrusiveness and parent distress in parents of youth with juvenile rheumatic diseases (JRDs).
Cross-sectional multiple regression analysis tested child age as a moderator in the illness intrusiveness-distress relationship.
Fifty-two parents of children ages 9-17 diagnosed with JRD.
The Illness Intrusiveness Scale--Parent Version and the Brief Symptom Inventory.
Parent-reported illness intrusiveness demonstrated a significant main effect on distress for all parents in the sample. This was qualified by an Illness Intrusiveness x Child Age interaction. Illness intrusiveness was found to be significantly related to distress among parents of older youth, but was only marginally related to distress for parents of younger children.
Results are consistent with family life cycle development models of adjustment to childhood chronic illness. The clinical implications of the findings are also discussed.
研究青少年风湿性疾病（JRD）患儿家长报告的疾病侵扰与家长痛苦之间与年龄相关的关联模式。
横断面多元回归分析将儿童年龄作为疾病侵扰与痛苦关系的调节变量进行检验。
52名9至17岁被诊断为JRD患儿的家长。
疾病侵扰量表（家长版）和简明症状量表。
家长报告的疾病侵扰对样本中所有家长的痛苦有显著的主效应。这受到疾病侵扰×儿童年龄交互作用的影响。发现疾病侵扰与年龄较大青少年的家长的痛苦显著相关，但与年龄较小儿童的家长的痛苦仅略有相关。
结果与适应儿童慢性病的家庭生命周期发展模型一致。还讨论了研究结果的临床意义。
