• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Lived Experiences of Mothers with Diabetic Children from the Transfer of Caring Role.患有糖尿病子女的母亲在护理角色转变中的生活经历。
Int J Community Based Nurs Midwifery. 2018 Jan;6(1):76-88.
2
The lived experience of mothers caring for school-age children with Pompe disease: A qualitative study.母亲照顾庞贝病学龄儿童的生活体验:一项定性研究。
J Pediatr Nurs. 2024 Nov-Dec;79:24-31. doi: 10.1016/j.pedn.2024.08.008. Epub 2024 Aug 26.
3
Exploring experiences of mothers of children with thalassemia major in Indonesia: A descriptive phenomenological study.探索印度尼西亚重型地中海贫血患儿母亲的经历:一项描述性现象学研究。
Belitung Nurs J. 2024 Oct 14;10(5):585-592. doi: 10.33546/bnj.3142. eCollection 2024.
4
The experiences of mothers of children with hydrocephalus in Jordan: A phenomenological study.约旦脑积水患儿母亲的体验:一项现象学研究。
J Pediatr Nurs. 2023 Mar-Apr;69:e127-e135. doi: 10.1016/j.pedn.2022.12.026. Epub 2022 Dec 29.
5
Lived experience caring for a child with Covid-19 disease: A phenomenological study.照顾新冠肺炎患儿的亲身经历:一项现象学研究。
Heliyon. 2023 Jul 20;9(8):e18481. doi: 10.1016/j.heliyon.2023.e18481. eCollection 2023 Aug.
6
Mothers caring experiences of children with congenital hand or foot abnormalities: A phenomenological study.母亲照顾先天手足畸形患儿的体验:一项现象学研究。
J Pediatr Nurs. 2022 Jan-Feb;62:e164-e169. doi: 10.1016/j.pedn.2021.09.016. Epub 2021 Sep 23.
7
Family caregivers' lived experiences of caring for epidermolysis bullosa patients: A phenomenological study.家庭照顾者照顾大疱性表皮松解症患者的体验:一项现象学研究。
J Clin Nurs. 2020 May;29(9-10):1552-1560. doi: 10.1111/jocn.15209. Epub 2020 Mar 3.
8
Mothers' lived experience of caring for children with inborn errors of amino acid metabolism.母亲照顾患有氨基酸代谢障碍的儿童的亲身经历。
BMC Pediatr. 2023 Jun 7;23(1):285. doi: 10.1186/s12887-023-03946-x.
9
A Qualitative Study Exploring the Experiences of Mothers Caring for Their Children with Thalassemia in Iran.伊朗母亲照顾地中海贫血症患儿的体验定性研究
Ethiop J Health Sci. 2021 Nov;31(6):1287-1294. doi: 10.4314/ejhs.v31i6.25.
10
[Hermeneutic Phenomenological Study on Caring Experience of the Mothers of Children with Epilepsy].[癫痫患儿母亲照护体验的诠释现象学研究]
J Korean Acad Nurs. 2017 Feb;47(1):71-85. doi: 10.4040/jkan.2017.47.1.71.

引用本文的文献

1
Exploring the experiences of mothers of children with type 1 diabetes in Northern Alberta: a qualitative descriptive study.探索阿尔伯塔省北部1型糖尿病患儿母亲的经历:一项质性描述性研究。
BMC Public Health. 2025 May 5;25(1):1655. doi: 10.1186/s12889-025-22457-1.
2
Psychosocial-Spiritual Experiences and Outcomes in Parents of Children with Type 1 Diabetes Mellitus from the Middle East and North Africa Region: A Systematic Review.中东和北非地区1型糖尿病患儿父母的心理社会-精神体验与结果:一项系统综述
Pediatr Diabetes. 2024 Jul 12;2024:6111661. doi: 10.1155/2024/6111661. eCollection 2024.
3
Parental care experience of children with type 1 diabetes: a qualitative meta-synthesis.父母对 1 型糖尿病患儿的照护体验:定性元分析。
Rev Esc Enferm USP. 2024 Nov 11;58:e20240118. doi: 10.1590/1980-220X-REEUSP-2024-0118en. eCollection 2024.
4
Comparison of the impact of type 1 and type 2 diabetes on quality of life of families of patients: A UK cross-sectional study.1型和2型糖尿病对患者家庭生活质量影响的比较:一项英国横断面研究。
Diabetes Obes Metab. 2025 Feb;27(2):652-662. doi: 10.1111/dom.16058. Epub 2024 Nov 24.
5
Caregiver burden among parents of children with type 1 diabetes: A qualitative scoping review.1型糖尿病患儿父母的照顾负担:一项定性范围综述
Heliyon. 2024 Mar 12;10(6):e27539. doi: 10.1016/j.heliyon.2024.e27539. eCollection 2024 Mar 30.
6
Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review.从父母到 1 型糖尿病患儿照护者的转变:范围综述。
Rev Bras Enferm. 2023 Jan 30;76(1):e20220201. doi: 10.1590/0034-7167-2022-0201. eCollection 2023.
7
Experiences and needs of Saudi mothers when a child or adolescent is diagnosed with type 1 diabetes mellitus: a qualitative study.沙特母亲在孩子或青少年被诊断出 1 型糖尿病时的经验和需求:一项定性研究。
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2107151. doi: 10.1080/17482631.2022.2107151.
8
Diabetes Experiences of Transition from Childhood to Adulthood Care.从儿童期到成年期护理过渡阶段的糖尿病经历
Florence Nightingale J Nurs. 2022 Feb;30(1):3-8. doi: 10.5152/FNJN.2022.20197.
9
How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study.1 型糖尿病患儿母亲的照护负担及其应对方式的定性研究。
BMC Endocr Disord. 2022 May 13;22(1):129. doi: 10.1186/s12902-022-01045-z.
10
Characterising common challenges faced by parental caregivers of children with type 1 diabetes mellitus in mainland China: a qualitative study.描述中国大陆 1 型糖尿病患儿父母照顾者面临的常见挑战:一项定性研究。
BMJ Open. 2022 Jan 11;12(1):e048763. doi: 10.1136/bmjopen-2021-048763.

本文引用的文献

1
General Life and Diabetes-Related Stressors in Early Adolescents With Type 1 Diabetes.1型糖尿病青少年早期的一般生活及与糖尿病相关的压力源
J Pediatr Health Care. 2016 Mar-Apr;30(2):133-42. doi: 10.1016/j.pedhc.2015.06.005. Epub 2015 Jul 30.
2
Living with type 1 diabetes is challenging for Zambian adolescents: qualitative data on stress, coping with stress and quality of care and life.对于赞比亚青少年来说,患1型糖尿病的生活充满挑战:关于压力、应对压力以及护理和生活质量的定性数据
BMC Endocr Disord. 2015 Apr 18;15:20. doi: 10.1186/s12902-015-0013-6.
3
The pathway to diagnosis of type 1 diabetes in children: a questionnaire study.儿童1型糖尿病的诊断途径:一项问卷调查研究。
BMJ Open. 2015 Mar 17;5(3):e006470. doi: 10.1136/bmjopen-2014-006470.
4
Bracketing as a skill in conducting unstructured qualitative interviews.将括弧法作为一种进行非结构化定性访谈的技巧。
Nurse Res. 2015 Mar;22(4):8-12. doi: 10.7748/nr.22.4.8.e1317.
5
Parent experiences raising young people with type 1 diabetes and celiac disease.抚养患有1型糖尿病和乳糜泻青少年的家长经历。
J Pediatr Nurs. 2015 Mar-Apr;30(2):353-63. doi: 10.1016/j.pedn.2014.09.011. Epub 2014 Oct 2.
6
Parents' information and support needs when their child is diagnosed with type 1 diabetes: a qualitative study.孩子被诊断为1型糖尿病时父母的信息及支持需求:一项定性研究
Health Expect. 2016 Jun;19(3):580-91. doi: 10.1111/hex.12244. Epub 2014 Jul 29.
7
Type 1 diabetes through the life span: a position statement of the American Diabetes Association.1型糖尿病的全生命周期:美国糖尿病协会的立场声明
Diabetes Care. 2014 Jul;37(7):2034-54. doi: 10.2337/dc14-1140.
8
Pathways to diagnosis: a qualitative study of the experiences and emotional reactions of parents of children diagnosed with type 1 diabetes.诊断途径:对1型糖尿病患儿家长的经历和情绪反应的定性研究
Pediatr Diabetes. 2014 Dec;15(8):591-8. doi: 10.1111/pedi.12124. Epub 2014 Feb 19.
9
Trends in the prevalence of diabetes and impaired fasting glucose in association with obesity in Iran: 2005-2011.伊朗肥胖相关的糖尿病和空腹血糖受损流行趋势:2005-2011 年。
Diabetes Res Clin Pract. 2014 Feb;103(2):319-27. doi: 10.1016/j.diabres.2013.12.034. Epub 2014 Jan 3.
10
Mothers' experience of having children with diabetes.母亲生育患有糖尿病孩子的经历。
Iran J Nurs Midwifery Res. 2013 Jul;18(4):304-9.

患有糖尿病子女的母亲在护理角色转变中的生活经历。

Lived Experiences of Mothers with Diabetic Children from the Transfer of Caring Role.

作者信息

Khandan Maryam, Abazari Farokh, Tirgari Batool, Cheraghi Mohammad Ali

机构信息

Department of Nursing and Midwifery, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

Department of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

Int J Community Based Nurs Midwifery. 2018 Jan;6(1):76-88.

PMID:29344538
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5747575/
Abstract

BACKGROUND

Following the confirmed type 1 diabetes in children and their discharge from the hospital, the care responsibilities are transferred from nurses to mothers. These mothers are faced with many challenges to play this caring role. The aim of this study was to explore the experiences of the diabetic children's mothers from the transfer of caring role.

METHODS

In 2016, semi-structured interviews with Eleven Iranian mothers of children (aged≤14 year) with type 1 diabetes were conducted. Data were analyzed using Colizzi's phenomenological method.

RESULTS

The following themes emerged in this study: 'Facing the care management challenges,' 'care in the shadow of concern', and 'hard life in the impasse of diabetes'.

CONCLUSION

The mothers of children with type 1 diabetes, who undertake the caring role that has been transferred to them by healthcare providers, are faced with many challenges. They feel a lot of concerns and experience a hard life. Thus, understanding the experiences of these mothers by the health professionals, to improve the quality of care, is necessary.

摘要

背景

儿童确诊为1型糖尿病并出院后,护理责任从护士转移至母亲。这些母亲在承担这一护理角色时面临诸多挑战。本研究旨在探讨糖尿病患儿母亲在护理角色转变方面的经历。

方法

2016年,对11名伊朗14岁及以下1型糖尿病患儿的母亲进行了半结构式访谈。采用科利齐现象学方法对数据进行分析。

结果

本研究出现了以下主题:“面对护理管理挑战”、“在担忧阴影下的护理”以及“糖尿病困境中的艰难生活”。

结论

承担由医护人员转移而来护理角色的1型糖尿病患儿母亲面临诸多挑战。她们深感担忧,生活艰难。因此,医护人员了解这些母亲的经历以提高护理质量很有必要。