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多发性硬化症患者日常生活工具性活动表现、生活质量自我报告与功能状态自我认知之间的关系。

The relationship among performance of instrumental activities of daily living, self-report of quality of life, and self-awareness of functional status in individuals with multiple sclerosis.

作者信息

Goverover Yael, Chiaravalloti Nancy, Gaudino-Goering Elizabeth, Moore Nancy, DeLuca John

机构信息

Department of Occupational Therapy, Steinhardt School of Culture, Education, and Human Development, New York University.

Kessler Medical Rehabilitation Research and Education Center.

出版信息

Rehabil Psychol. 2009 Feb;54(1):60-68. doi: 10.1037/a0014556.

Abstract

OBJECTIVE

To investigate the relationship between self-awareness of functional status and performance of Instrumental Activities of Daily Living (IADL), and self-reports of quality of life (QOL) in persons with multiple sclerosis (MS).

DESIGN

A between-groups design, using a correlational approach to examine the relationship between self-awareness of functional status, IADL and QOL.

PARTICIPANTS

We studied 47 individuals with clinically definite MS and 26 healthy controls (HCs).

MEASURES

The Functional Behavior Profile was completed by both participants and their informants. Participants' scores were subtracted from those of their informants', and the absolute value was used as the self-awareness/concordance score. The Executive Function Performance Test measured IADL performance; QOL was measured with the Functional Assessment of Multiple Sclerosis.

RESULTS

MS participants showed lower levels of self-awareness relative to HCs. Significant correlations were observed between performance of IADL, reports of QOL and self-awareness levels of functional status. However, reports of QOL were not significantly correlated with performance of IADL.

CONCLUSIONS

The positive association between self-awareness of functional status with IADL performance and QOL reports provides support for the role of awareness in rehabilitation.

摘要

目的

探讨多发性硬化症(MS)患者功能状态的自我认知与日常生活活动能力(IADL)表现以及生活质量(QOL)自我报告之间的关系。

设计

组间设计,采用相关方法检验功能状态自我认知、IADL和QOL之间的关系。

参与者

我们研究了47例临床确诊的MS患者和26名健康对照者(HCs)。

测量方法

参与者及其信息提供者均完成功能行为概况调查。用信息提供者的得分减去参与者的得分,取绝对值作为自我认知/一致性得分。执行功能表现测试测量IADL表现;QOL用多发性硬化症功能评估量表进行测量。

结果

与HCs相比,MS患者的自我认知水平较低。IADL表现、QOL报告与功能状态自我认知水平之间存在显著相关性。然而,QOL报告与IADL表现无显著相关性。

结论

功能状态自我认知与IADL表现及QOL报告之间的正相关支持了自我认知在康复中的作用。

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