van Wijngaarden Bob, Koeter Maarten, Knapp Martin, Tansella Michele, Thornicroft Graham, Vázquez-Barquero José-Luis, Schene Aart
Netherlands Institute of Mental Health and Addiction, Utrecht, The Netherlands.
Psychiatry Res. 2009 Aug 30;169(1):62-9. doi: 10.1016/j.psychres.2008.06.013. Epub 2009 Jul 21.
Attention to caregiver consequences has been mainly restricted to caregivers of patients with schizophrenia. The few studies done in depression were conducted on small samples and/or with non-validated instruments. Caregiver consequences in depression and schizophrenia were measured with the validated Involvement Evaluation Questionnaire (IEQ). IEQ scores of caregivers of 252 mainly outpatients with depression and caregivers of 151 mainly outpatients with schizophrenia were compared. IEQ scores were quite similar for depression and schizophrenia. Caregivers of patients with schizophrenia worry more and have more nursing tasks; in case of depression caregivers experience more tension between spouses. In case of many consequences caregivers live close to a patient who has more acute symptoms. They have more additional expenses on behalf of the patient, and report higher distress scores. In case of depression caregivers report less social support, and less coping abilities. Caregiver consequences of depression and schizophrenia are very similar. Differences reflect the context in which caregiving takes place: In schizophrenia mostly elderly mother caring for their ill (adult) child, in depression mostly spouses caring for their partner. Caregivers of patients with depression should be given more attention and support by professionals.
对照料者影响的关注主要局限于精神分裂症患者的照料者。针对抑郁症患者照料者开展的少数研究样本量小,且/或使用的是未经验证的工具。使用经过验证的参与度评估问卷(IEQ)来衡量抑郁症和精神分裂症患者照料者所受的影响。比较了252名主要为门诊患者的抑郁症患者照料者和151名主要为门诊患者的精神分裂症患者照料者的IEQ得分。抑郁症和精神分裂症患者照料者的IEQ得分相当相似。精神分裂症患者的照料者担忧更多,护理任务也更多;而抑郁症患者的照料者在配偶关系中会经历更多紧张情绪。在有许多影响的情况下,照料者所照料的患者症状更严重。他们为患者承担更多额外费用,且苦恼得分更高。在抑郁症方面,照料者报告获得的社会支持更少,应对能力也更弱。抑郁症和精神分裂症患者照料者所受的影响非常相似。差异反映了照料发生的背景:精神分裂症患者大多是老年母亲照料患病(成年)子女,抑郁症患者大多是配偶照料伴侣。抑郁症患者的照料者应得到专业人员更多的关注和支持。