Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
PLoS One. 2022 Jul 8;17(7):e0270278. doi: 10.1371/journal.pone.0270278. eCollection 2022.
We conducted a systematic literature review to identify and review the concepts and questionnaires used to assess the impact of caregiving on caregivers for adults with a mental disorder. With our study, we aimed to provide an overview and categorize the conceptualization and operationalization of the impact of caregiving, with special attention for the complexity and multi-conceptualization of concepts. Embase, Medline, PsycInfo, Web of Science Core Collection, Cochrane Central Register of Trials, Cinahl Plus, Econlit and Google Scholar were systematically searched for articles from 1 January 2004 to 31 December 2019. Eligible articles were peer-reviewed studies that assessed the impact of caregiving for informal caregivers of adults with a reported mental disorder by means of a questionnaire. The complete study protocol can be found on PROSPERO (CRD42020157300). A total of 144 questionnaires were identified that assessed the impact of caregiving. Based on similarities in meaning, concepts were classified into 15 concept clusters. The most frequently assessed concept clusters were mental health, caregiving burden, other caregiving consequences, family impact, and overall health-related outcomes. The use of concept clusters differed per diagnosis group, with diagnoses, such as schizophrenia, using a wide range of caregiving impact concepts and other diagnoses, such as personality disorders, only using a limited range of concepts. This is the first study that identified and reviewed the concepts and questionnaires that are used to assess the impact of caregiving. Caregiving is researched from a broad array of perspectives, with the identification of a variety of concepts and dimensions and use of non-specific questionnaires. Despite increasing interest in this field of research, a high degree of variability remains abundant with limited consensus. This can partially be accredited to differences in the naming of concepts. Ultimately, this review can serve as a reference to researchers who wish to assess the impact of caregiving and require further insight into concepts and their respective questionnaires.
我们进行了系统的文献回顾，以确定和审查用于评估护理人员对患有精神障碍的成年人的影响的概念和问卷。通过我们的研究，我们旨在提供一个概述，并对护理影响的概念化和操作化进行分类，特别关注概念的复杂性和多概念化。我们系统地搜索了 Embase、Medline、PsycInfo、Web of Science Core Collection、Cochrane Central Register of Trials、Cinahl Plus、Econlit 和 Google Scholar 从 2004 年 1 月 1 日至 2019 年 12 月 31 日的文章。符合条件的文章是评估通过问卷评估报告有精神障碍的成年人的非正式照顾者的照顾影响的同行评审研究。完整的研究方案可以在 PROSPERO（CRD42020157300）上找到。确定了 144 份评估照顾影响的问卷。基于相似的含义，概念被分类为 15 个概念群。评估频率最高的概念群是心理健康、照顾负担、其他照顾后果、家庭影响和整体健康相关结果。每个诊断组的概念群使用情况不同，例如精神分裂症等诊断使用广泛的照顾影响概念，而人格障碍等其他诊断仅使用有限范围的概念。这是首次确定和审查用于评估照顾影响的概念和问卷的研究。从广泛的角度研究了照顾，确定了各种概念和维度，并使用了非特定的问卷。尽管对这一研究领域的兴趣日益浓厚，但仍然存在大量的可变性，共识有限。这部分可以归因于概念命名的差异。最终，本综述可以为希望评估照顾影响并需要进一步了解概念及其各自问卷的研究人员提供参考。
