Bremmers Leonarda G M, Fabbricotti Isabelle N, Gräler Eleonora S, Uyl-de Groot Carin A, Hakkaart-van Roijen Leona
Erasmus University Rotterdam, The Netherlands.
Health Psychol Open. 2024 Aug 6;11:20551029241262883. doi: 10.1177/20551029241262883. eCollection 2024 Jan-Dec.
This study assessed the quality of life of informal caregivers for individuals with mental health problems in the Netherlands. An online survey was administered to a panel of informal caregivers in June 2020 ( = 261). Informal caregivers of persons with mental problems were found to have an exceptionally low quality of life. A high subjective burden ( < .001), lower perseverance time ( = .016), low caregiver overall health status ( = .004) and psychological wellbeing ( = .008), younger caregiver age ( = .011), child caregiving responsibilities ( = .025), and no social support network ( = .038) were associated with worse quality of life scores. These findings shed light on the significant challenges faced by informal caregivers of persons with mental health problem. This raises concerns about the long-term sustainability of informal care and mental healthcare reform.
本研究评估了荷兰心理健康问题患者的非正式照料者的生活质量。2020年6月对一组非正式照料者进行了在线调查(n = 261)。发现有心理问题者的非正式照料者生活质量极低。较高的主观负担(p <.001)、较短的坚持时间(p =.016)、较低的照料者总体健康状况(p =.004)和心理健康(p =.008)、较年轻的照料者年龄(p =.011)、育儿照料责任(p =.025)以及没有社会支持网络(p =.038)都与较差的生活质量得分相关。这些发现揭示了心理健康问题患者的非正式照料者所面临的重大挑战。这引发了对非正式照料的长期可持续性和精神卫生保健改革的担忧。