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直觉、主观性与修补匠:癌症患者对多种治疗选择进行协商的叙述

Intuition, subjectivity, and Le bricoleur: cancer patients' accounts of negotiating a plurality of therapeutic options.

作者信息

Broom Alex

机构信息

University of Sydney, Sydney, New South Wales, Australia.

出版信息

Qual Health Res. 2009 Aug;19(8):1050-9. doi: 10.1177/1049732309341190.

Abstract

Cancer patients are now combining complementary and alternative medicine (CAM) with biomedical cancer treatments, reflecting an increasingly pluralistic health care environment. However, there has been little research done on the ways in which cancer patients juggle multiplicity in claims to expertise, models of disease, and therapeutic practice. Drawing on the accounts of cancer patients who use CAM, in this article I develop a conceptualization of therapeutic decision making, utilizing the notion of bricolage as a key point of departure. The patient accounts illustrate the "piecing together" (or bricolage) of therapeutic trajectories, drawing on intuitive, embodied knowledge, as well as formalized "objective" scientific expertise. Le bricoleur, as characterized here, actively mediates, rather than accepts or rejects CAM or biomedicine, and utilizes a combination of scientific expertise, embodied physicality, and social knowledge to make decisions and assess therapeutic effectiveness. Although these "border crossings" are potentially subversive of established biomedical expertise, the analysis also illustrates the structural constraints (and penalties) associated with bricolage, and furthermore, the interplay of a repositioning of responsibility with neoliberal forms of self-governance.

摘要

癌症患者现在正将补充和替代医学(CAM)与生物医学癌症治疗方法相结合,这反映出医疗保健环境日益多元化。然而,关于癌症患者如何在专业知识主张、疾病模型和治疗实践的多样性之间进行权衡,目前的研究还很少。本文借鉴了使用补充和替代医学的癌症患者的叙述,以“拼贴”概念为关键出发点,对治疗决策进行了概念化阐述。患者的叙述展示了治疗轨迹的“拼凑”(即拼贴),它借鉴了直观的、身体的知识以及形式化的“客观”科学专业知识。这里所描述的“修补匠”积极进行调解,而不是接受或拒绝补充和替代医学或生物医学,而是利用科学专业知识、身体感知和社会知识的组合来做出决策并评估治疗效果。虽然这些“跨界行为”可能会颠覆既定的生物医学专业知识,但分析也揭示了与拼贴相关的结构限制(和惩罚),此外,还揭示了责任重新定位与新自由主义自我治理形式之间的相互作用。

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