Lewis F M, Deal L W
Department of Community Health Care System, University of Washington, Seattle, USA.
Oncol Nurs Forum. 1995 Jul;22(6):943-53.
PURPOSE/OBJECTIVES: To examine the married couple's experience with breast cancer recurrence from each partner's own perspective, to describe their mood and martial quality, and to develop an initial explanatory theory of the couple's lived experience with breast cancer recurrence.
Descriptive, qualitative.
Homes of married couples in the Pacific Northwestern United States.
15 married couples comprised of women diagnosed with recurrent breast cancer and their husbands. The median length of time since recurrence was 10 months.
Structured interviews were conducted in the homes of married couples that met eligibility criteria using an open-ended interview schedule, the Marital Dyad Interview, and two standardized questionnaires-the Spanier Dyadic Adjustment Scale and the Center for Epidemiological Studies Depression Scale.
Lived experience of couples to breast cancer recurrence, depressed mood, and marital adjustment.
BALANCING OUR LIVES was the core category that explained how the couples lived with the breast cancer recurrence. Couples actively worked to balance their lives by keeping the breast cancer a background, not a foreground, issue. Although couples talked about managing the daily realities of the woman's breast cancer, not dwelling on the cancer and moving ahead and healing themselves was most important. Balancing Our Lives involved the couples in four major processes: managing the woman's everyday illness, surviving, healing, and preparing for death. Concurrently, one or both members of 60% of the couples scored outside the normative range on either depressed mood or marital adjustment.
The couples' ways of managing the breast cancer recurrence through balancing their lives may be facilitating their behavioral functioning but may not be enhancing their mood or marital quality.
The couples' management of recurrence may benefit from additional strategies, including helping them work through sad thoughts or feelings instead of avoiding them; recognizing and supporting each other's views, even when their views differ; and helping them to learn ways to express sad thoughts and feelings without overly dwelling on them.
目的/目标：从夫妻双方各自的角度审视已婚夫妇对乳腺癌复发的经历，描述他们的情绪和婚姻质量，并构建一个关于夫妻乳腺癌复发生活经历的初步解释性理论。
描述性、定性研究。
美国太平洋西北部已婚夫妇的家中。
15对已婚夫妇，其中女性被诊断为复发性乳腺癌，其丈夫参与研究。复发后的中位时间为10个月。
对符合入选标准的已婚夫妇进行结构化访谈，采用开放式访谈提纲、婚姻二元访谈以及两份标准化问卷——斯帕尼尔二元调适量表和流行病学研究中心抑郁量表。
夫妻对乳腺癌复发的生活经历、抑郁情绪和婚姻调适。
“平衡我们的生活”是解释夫妻如何应对乳腺癌复发的核心类别。夫妻双方积极努力通过将乳腺癌作为背景而非首要问题来平衡他们的生活。虽然夫妻会谈论应对女性乳腺癌的日常现实，但不纠结于癌症，向前看并自我疗愈才是最重要的。“平衡我们的生活”涉及夫妻四个主要过程：管理女性的日常疾病、生存、疗愈以及为死亡做准备。同时，60%的夫妻中一方或双方在抑郁情绪或婚姻调适方面得分超出正常范围。
夫妻通过平衡生活来应对乳腺癌复发的方式可能有助于他们的行为功能，但可能无法改善他们的情绪或婚姻质量。
夫妻对复发的管理可能受益于额外的策略，包括帮助他们梳理悲伤的想法或感受而非回避；即使观点不同，也要认可并支持彼此的观点；帮助他们学习表达悲伤想法和感受的方式，而不过度纠结于此。
