Alsaker Sissel, Bongaardt Rob, Josephsson Staffan
Sør-Trøndelag University College, Trondheim, Norway.
Qual Health Res. 2009 Aug;19(8):1154-61. doi: 10.1177/1049732309341478.
In this article we aim to sculpt a possible methodology for studying how a good everyday life comes about when living with chronic rheumatic conditions (CRC). Our "how" focus acknowledges a woman with CRC as one member of a diverse population, whereby we question the biomedically based view that she differs from the population. The more frequently asked "what" question colors study designs and results in categories and characteristics regarding what she is able to do and what adaptations she has made in everyday life as a consequence of her disease. Adopting a narrative approach, we ask how a good everyday life comes about, and illustrate this with ethnographic material of the everyday activities of women living with CRC. We conceptualize narrative as embedded in the process of enacting activities. Furthermore, we highlight hermeneutical interpretative processes of how meaning works in the stream of everyday action.
在本文中,我们旨在构建一种可能的方法,用于研究患有慢性风湿性疾病(CRC)的人如何拥有美好的日常生活。我们关注“如何”,这意味着将患有CRC的女性视为多样化人群中的一员,从而质疑基于生物医学的观点,即她与普通人群不同。更为常见的“是什么”问题影响了研究设计,并得出了关于她能够做什么以及由于疾病在日常生活中做出了哪些适应的类别和特征。采用叙事方法,我们探究美好的日常生活是如何形成的,并用患有CRC的女性日常活动的民族志材料对此进行说明。我们将叙事概念化为嵌入在活动实施过程中。此外,我们强调了意义在日常行动流中如何起作用的诠释性解释过程。