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成年脑瘫患者:提供者与患者的视角

The adult with cerebral palsy: a provider-consumer perspective.

作者信息

Murphy Kevin P, Sobus Kerstin, Michael Bliss Patrick

机构信息

Gillette Children's Specialty Healthcare, 1420 East London Road, Duluth, MN 55805, USA.

出版信息

Phys Med Rehabil Clin N Am. 2009 Aug;20(3):509-22. doi: 10.1016/j.pmr.2009.06.009.

DOI:10.1016/j.pmr.2009.06.009
PMID:19643350
Abstract

Advances in medical and surgical care over the past 20 years have resulted in children who formerly would have died at birth or in infancy now surviving into adulthood, many with significant, permanent physical disabilities, including those due to cerebral palsy (CP). Increased awareness of these problems is needed by adult health care providers, who will be providing direct care to these individuals, and also by pediatric providers, who may be able to anticipate and prevent some of the long-term problems. This article reviews the common medical-surgical problems and their management in adults with CP. In addition the life experience of a 44 year-old with CP is described from a personal perspective.

摘要

在过去20年里,医疗和外科护理的进步使那些过去可能在出生时或婴儿期就死亡的儿童如今存活至成年,其中许多人患有严重的永久性身体残疾,包括因脑瘫(CP)导致的残疾。成人医疗保健提供者需要提高对这些问题的认识,他们将直接为这些个体提供护理,儿科提供者也需要提高认识,因为他们或许能够预见并预防一些长期问题。本文综述了成人脑瘫患者常见的医疗和外科问题及其管理。此外,还从个人角度描述了一名44岁脑瘫患者的生活经历。

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