Jones Gwyn C
Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Atlanta, GA 30333, USA.
Dev Med Child Neurol. 2009 Oct;51 Suppl 4:12-5. doi: 10.1111/j.1469-8749.2009.03427.x.
This article describes the lived experience of one 64-year-old woman who is aging with cerebral palsy (CP) and other multiple disabilities. Reflections are offered on coping with secondary conditions and functional decline; fighting the effects of pain and fatigue; and managing well-meaning, but misdirected, medical advice. Recommendations based on the author's personal and professional experience with disabilities, including CP, are presented on the aging process and on preventive care for adults living with CP.
本文描述了一位64岁患有脑瘫及其他多种残疾的女性的生活经历。文中思考了应对继发疾病和功能衰退、对抗疼痛和疲劳的影响，以及处理善意但错误的医疗建议等问题。基于作者对包括脑瘫在内的残疾情况的个人及专业经验，针对老龄化过程以及成年脑瘫患者的预防保健提出了建议。
