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智力残疾者的健康自主权:文献综述

Autonomy in relation to health among people with intellectual disability: a literature review.

作者信息

Wullink M, Widdershoven G, van Schrojenstein Lantman-de Valk H, Metsemakers J, Dinant G-J

机构信息

Department of General Practice, Maastricht University, Maastricht, Netherlands.

出版信息

J Intellect Disabil Res. 2009 Sep;53(9):816-26. doi: 10.1111/j.1365-2788.2009.01196.x. Epub 2009 Jul 23.

Abstract

BACKGROUND

Since the 1990s, individualisation, participation, normalisation and inclusion have been the main principles of care for people with intellectual disability (ID). Autonomy has become an important issue for these people. This review of the literature tried to answer the question: how do people with ID exercise autonomy in relation to health?

METHOD

Searches in Cochrane, Medline and PsycINFO were based on the following aspects of autonomy: self-determination, independence, self-regulation and self-realisation.

RESULTS

Thirty-nine of 791 articles met our criteria, including 14 on self-determination, seven on independence, 15 on self-regulation and three on self-realisation.

CONCLUSIONS

In spite of decades of promoting autonomy, the exercise of autonomy in relation to health has so far rarely been an issue in the literature.

摘要

背景

自20世纪90年代以来,个性化、参与、正常化和包容一直是智力残疾者护理的主要原则。自主性已成为这些人的一个重要问题。这篇文献综述试图回答以下问题:智力残疾者在健康方面如何行使自主权?

方法

在考克兰图书馆、医学索引数据库和心理学文摘数据库中进行检索,检索基于自主性的以下几个方面:自我决定、独立、自我调节和自我实现。

结果

791篇文章中有39篇符合我们的标准,其中14篇关于自我决定,7篇关于独立,15篇关于自我调节,3篇关于自我实现。

结论

尽管数十年来一直在促进自主性,但迄今为止,智力残疾者在健康方面行使自主权在文献中很少成为一个问题。

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