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护士主导的同伴支持小组:多囊卵巢综合征女性的体验。

Nurse-led peer support group: experiences of women with polycystic ovary syndrome.

机构信息

Coventry University, UK.

出版信息

J Adv Nurs. 2009 Oct;65(10):2046-55. doi: 10.1111/j.1365-2648.2009.05061.x.

Abstract

AIM

This paper is a report of a study to explore the experiences of women with polycystic ovary syndrome attending a nurse-led support group.

BACKGROUND

Polycystic ovary syndrome is a common chronic endocrine disorder associated with high levels of psychological distress. It has been argued that healthcare providers should regularly review the psychological health of women with polycystic ovary syndrome, and that nurses can help women to adjust to the condition by providing education and support. Little is known about the means of providing social support for women with the syndrome, or of any benefits for patients.

METHOD

Qualitative interviews were conducted with 13 female patients in 2006. The patients attended a support group at a public hospital in the United Kingdom. The data were analysed using deductive and inductive thematic analysis.

FINDINGS

The group provided both socio-emotional and informational social support. Participants reported that attending the group helped to reduce isolation, and provided an opportunity for social comparison and accessible and personally relevant information. Participants described the group as having had a major personal impact for them. They reported feeling empowered and direct positive effects on their self-management behaviours.

CONCLUSION

Social support appears to be a key factor mediating the psychosocial impact in women with polycystic ovary syndrome. Healthcare providers should consider running such support groups or referring patients to them. Providing social support may alleviate distress and improve self-management.

摘要

目的

本文是一项研究报告,旨在探讨多囊卵巢综合征女性参加护士主导的支持小组的体验。

背景

多囊卵巢综合征是一种常见的慢性内分泌紊乱疾病,与心理困扰程度高有关。有人认为,医疗保健提供者应定期检查多囊卵巢综合征女性的心理健康,护士可以通过提供教育和支持来帮助女性适应病情。目前尚不清楚为该综合征女性提供社会支持的方式,也不清楚对患者有何益处。

方法

2006 年,对英国一家公立医院的 13 名女性患者进行了定性访谈。这些患者参加了一个支持小组。使用演绎和归纳主题分析对数据进行分析。

结果

该小组提供了社会情感和信息社会支持。参与者报告说,参加小组有助于减少孤立感,并提供了社会比较和可及且与个人相关的信息的机会。参与者形容小组对他们个人产生了重大影响。他们表示感到有力量,对他们的自我管理行为有直接的积极影响。

结论

社会支持似乎是多囊卵巢综合征女性心理社会影响的一个关键因素。医疗保健提供者应考虑开办此类支持小组或将患者转介给他们。提供社会支持可能会减轻痛苦并改善自我管理。

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