Hamilton-West Kate E, Quine Lyn
Department of Psychology, University of Kent, Kent, UK.
J Health Psychol. 2009 Sep;14(6):820-30. doi: 10.1177/1359105309341394.
Ankylosing Spondylitis (AS) is a potentially debilitating chronic condition that necessitates a biopsychosocial approach for successful long-term management. However, the psychosocial consequences of AS are not well understood. In this study patients (N = 68) reported impacts of AS across a wide range of life domains; negative impacts included physical effects of AS, changes in mood or personality, effects on social life and relationships with friends and family, low self-esteem, stigma and worry about the future; positive impacts included increased exercise, feelings of achievement and empathy, stronger relationships, slower pace of life and a more positive perspective. Implications for treatment are discussed.
强直性脊柱炎（AS）是一种可能导致身体衰弱的慢性疾病，需要采用生物心理社会方法进行长期成功管理。然而，AS的心理社会后果尚未得到充分理解。在本研究中，68名患者报告了AS在广泛生活领域的影响；负面影响包括AS的身体影响、情绪或性格变化、对社交生活以及与朋友和家人关系的影响、自卑、耻辱感和对未来的担忧；积极影响包括运动量增加、成就感和同理心增强、关系更紧密、生活节奏放缓以及更积极的心态。文中讨论了对治疗的启示。
