Mundhenke Lotta, Hermansson Liselotte, Sjöqvist Nätterlund Birgitta
Centre for Rehabilitation Research, Orebro University Hospital, Orebro, Sweden.
Scand J Occup Ther. 2010;17(2):130-9. doi: 10.1080/11038120903114386.
The purpose of this study was to describe experiences of everyday activities and social support in daily life in children with disabilities.
Interviews were conducted with 33 children (14 girls and 19 boys, aged 7-13 years) with physical, intellectual, or neuro-psychiatric disability. Interviews were analysed using qualitative content analysis.
In many ways, the children described themselves as being like any other child or adolescent. Their narratives showed that they had developed strategies to cope with the consequences of their disability, both socially and in the performance of daily activities. The children received social support in everyday activities, mainly from their family and close friends. Meeting other children with the same disability supported opportunities for identification. However, their experiences of everyday activities were in many cases associated with sadness, especially when they could not participate in activities with their peers.
According to the children's statements, it is important for people close to these children, both habilitation staff and others, to take responsibility for improving emotional, informative, and instrumental support in order to enable the children to perform and participate in everyday activities.
本研究旨在描述残疾儿童日常生活活动及日常生活中社会支持的经历。
对33名身体、智力或神经精神残疾儿童（14名女孩和19名男孩，年龄7至13岁）进行访谈。采用定性内容分析法对访谈进行分析。
在很多方面，这些儿童将自己描述得与其他儿童或青少年无异。他们的叙述表明，他们已经制定了应对残疾后果的策略，无论是在社交方面还是在日常活动表现中。这些儿童在日常活动中获得了社会支持，主要来自家人和亲密朋友。与其他患有相同残疾的儿童见面为认同感的形成提供了机会。然而，他们在日常活动中的经历在很多情况下都伴随着悲伤，尤其是当他们无法与同龄人一起参与活动时。
根据儿童的陈述，对于这些儿童身边的人，无论是康复工作人员还是其他人来说，重要的是要负责改善情感、信息和工具性支持，以使儿童能够进行并参与日常活动。
